15 Life Lessons from 15 Years Living with Lupus

15 Life Lessons from 15 Years Living with Lupus

Karin W

November 9, 2023

It’s been 15 years since I was diagnosed with Systemic Lupus Erythematosus (SLE), which primarily manifested itself with debilitating arthritis and organ complications. My path has been challenging (sometimes at my own doing ;-), but it’s been incredibly fulfilling once I embraced my journey with an autoimmune disease. 

I’ve gone through periods where I took my medication but flat-out ignored self-care and ruthlessly pushed through an overcommitted schedule. I sent emails from my hospital bed post-total-knee-replacement surgery. Not smart. That only works for so long before illness catches up with you. And mine certainly did. 

Thank God. 

Lupus has changed my life, and I’m grateful to be able to share the information and insights I’ve learned over the past 15 years, which have helped me navigate the challenges of living with Lupus and transformed my life profoundly. While they may not all resonate with you now, I encourage you to stay curious. My life changed when I got curious.

1. Have Faith.

I got a text from a friend to go on a ski trip. I declined because I was hooked up to an IV in the ICU, receiving blood thinners to dissipate the extensive blood clots in my lungs. 

At 23 years old, I felt like the world was passing me by as I stared out my hospital window, losing hope that I would not get to participate in life the way I envisioned. The stark contrast between my friends’ vibrant adventures and my hospital view left me feeling robbed of the life I had anticipated.

I want to say it was in that hospital room I leaned into my faith, but instead, I pulled away, grappling with the unfairness of my situation. However, my persistence shone through as I clung to positivity, celebrated small victories, and embraced gratitude. This persistence birthed profound thankfulness for the present moment and a renewed hope for the future.

Hindsight gifted me the realization of my sheer fortune to be alive, a perspective I had lost in the throes of despair. Whether you find solace in God, the universe, or another form of faith, opening yourself to its abundance becomes a beacon in the darkest hours. 

It’s a testament to the resilience of the human spirit, forging hope from adversity and discovering that, even in the hospital’s quiet, the pulse of life beats with profound gratitude and unwavering hope.

2. Get Clear on Your Purpose and Values.

Your purpose, or life’s mission, is your North Star. This guiding light helps you align your priorities with your evolving life circumstances. Your values act as guardrails, ensuring you stay on the right path even when life throws you off course. 

When you’re faced with an autoimmune disease like Lupus, it can be easy to feel lost or overwhelmed by the weight of an intense chronic illness. That’s precisely why we need to get clear on our purpose. Purpose provides resilience. 

Your North Star and values provide the resilience you need to keep moving forward. It’s not always straightforward; sometimes, these diseases can be downright brutal, but having a clear sense of purpose and values can help you find beauty and love even in the most challenging moments.

3. Get Thanking.

Expressing gratitude for the abundance in our lives is a gesture of appreciation and a powerful catalyst for personal growth. It is through this act of thankfulness that we find our true purpose. 

When we concentrate on our journey’s “why” and “who,” we transition into profound gratitude; it’s a reminder that our pursuit of becoming the best version of ourselves is closely intertwined with the people who support and inspire us. 

Gratitude fuels our desire to give back, and we find fulfillment most rewarding in serving others. It’s a beautiful cycle of self-improvement and selflessness that enriches our lives and those around us.

Fun Fact: When we practice gratitude, our bodies make immunoglobulins – our natural defense against viruses and bacteria – and our immune systems strengthen along with other health benefits!2

4. Self-Respect is Vital.

Early on in my autoimmune journey, my priorities were out of order. I was focusing on too many things, and because I was stretched too thin, I wasn’t being my best self at any of it, especially for my family. Naturally, insecurities, self-doubt, and guilt plagued my thoughts. 

Thankfully, my close friends and mentors supported me through those dark times of self-doubt. Find people who will see the best in you, even when you can’t see it yourself. 

But ultimately, it has to come from within. Restructuring my life to align with my values gave me the space to stand up for my family in a way I previously didn’t realize was possible with an autoimmune disease.

The values allowed me to cut out the chaos and be hyper-intentional about where and how I spend my time. When I structured my day and created routines aligned with my values, self-confidence and self-respect followed.

Knowing I’m striving daily to live by my values provides self-worth and love for myself and those around me. Journaling about my accomplishments has trained my brain to focus on the value I’m providing vs. the endless tasks I didn’t get to on my to-do list. 

If you’re struggling with self-doubt, go back to lesson one 🙂 

5. Failure is the Essential Ingredient for Growth.

In our success-driven culture, failure is often viewed as a stumbling block, a setback, or something to be avoided at all costs. However, the reality is quite the opposite. Failure is not a sign of weakness or incompetence but an essential ingredient for growth and personal development. 

This is especially true when living with a chronic illness inherently involves facing adversity. Flare-ups, pain, and unpredictable symptoms can be disheartening and discouraging. Yet, it’s in these moments of struggle that resilience is forged. Resilience is the ability to bounce back from setbacks, a quality that can be cultivated through experiencing and overcoming failure.

Failure is a potent teacher. Trying something that doesn’t work out as planned is an opportunity to gain new insights and knowledge. This newfound understanding can lead to more informed decisions and strategies for the future. In the realm of chronic illness, learning from failure can be life-changing.

For example, suppose you’ve experimented with a particular dietary approach to manage Lupus or another autoimmune disease, and it didn’t yield the expected results. In that case, it doesn’t mean the effort was in vain. It means you now have valuable information about what doesn’t work for you. This knowledge can guide you towards more effective solutions and a better understanding of your own body.

Failure tests your mettle and pushes you beyond your comfort zone. It forces you to adapt, learn, and persevere. In the context of autoimmune disease, a failed attempt at managing your symptoms or a setback in your treatment plan can be seen as an opportunity to learn about yourself, refine, and go again. Setbacks allow you to develop the resilience needed to face future challenges. Each failure is not a stumbling block but a stepping stone.

6. Orchestrate Your Life to Create a Symphony.

The saying, “If you don’t make time for your wellness, you’ll be forced to make time for your illness,” resonates strongly with my journey. Like many, I was stubborn and pushed through the pain and fatigue.

It took a hospital stay for me to reevaluate my lifestyle and learn about epigenetics (definition), which taught me that we have more control over our health than we previously thought. Prioritizing wellness is an investment in your future well-being.

Wellness isn’t just about physical health; it’s about holistic well-being. For instance, getting enough sleep does more than give you more energy; adequate sleep (7-8 hours) can:

  • Boost your immune system and make vaccines more effective
  • Help prevent weight gain by repressing cravings and appetite 
  • Strengthen your heart
  • Elevate your mood and reduce feelings of annoyance, irritant, and anger 
  • Improves memory – how about that for brain fog!4

It’s more than just getting enough sleep or eating the right foods. Those actions that seem to have a singular effect on our health contribute to other aspects of our health. 

conductor conducting and orchestra

While we tend to look at these health aspects in silos, it’s essential to consider a holistic approach. Practice each instrument, learn how their sounds interact, refine until we have music, and optimize until we have a symphony.

When you hear an off-tune sound, revisit the instrument. We’re continuously evolving; staying in tune is critical to creating beautiful music.

7. Stand Up Every Day: Persistence and Patience.

With autoimmune challenges, standing up every day transcends the physical act. Standing might be symbolic sometimes, finding alternative ways to engage with life and work towards your goals. 

On days when physical limitations prevail, it’s a moment for gentle stretching or immersing yourself in an informative podcast.

Regardless of its form, this daily commitment becomes a testament to persistence and patience. It’s a declaration that you actively participate in your journey, no matter the circumstances. 

By remaining engaged amidst autoimmune challenges, we anchor ourselves to our purpose and values, shielding ourselves against the encroaching shadows of hopelessness. Standing up embodies resilience in whatever manifestation is feasible on a given day.

Persisting and persevering through the unpredictability of autoimmune conditions is a marathon, not a sprint. We may not discern the tipping point where the tides turn, but the unwavering faith in its existence fuels the patience and fortitude needed to stand up every day. 

No matter how small, each act propels us forward, reaffirming the journey is not just about reaching the destination but about the strength found in the daily steps and who we become in the process.

8. Making the Hard Choice Now Makes Life Easier for Your Future Self.

Making challenging choices today is an investment in a smoother, more fulfilling future. Whether it’s battling the allure of sugar, the endless scroll of social media, or the captivating abyss of Netflix, our vices can exert a powerful pull.

These distractions not only hinder productivity but can also derail our overall well-being. 

Establishing routines and systems as a barrier against these temptations becomes crucial. Doing so reduces decision fatigue and creates an environment conducive to healthier choices. 

It’s about recognizing that hard choices pave the way for a future where well-being is prioritized and distractions lose their grip. Implementing these structures is a form of self-care that echoes through time, making the journey toward a healthier and more focused self an achievable and sustainable endeavor.

To learn more about setting yourself up for success, see the post: How to Turn Bad Habits into Healthy Habits by Addressing 6 Sources that Influence Our Behavior

9. Have Empathy for Your Supporters.  

The impact of autoimmune diseases ripples through the lives of those around us, touching family, friends, neighbors, and co-workers. Often, they bear the weight of these diseases with a unique kind of strength.

While we navigate the challenges firsthand, they find themselves on the sidelines, offering support and encouragement but feeling powerless. Living with an autoimmune condition becomes a shared journey, a test of patience not just for us but for our steadfast supporters as well.

Transparency about our diseases becomes a bridge, helping them comprehend our situations and offer more meaningful support.

To the friends and loved ones supporting individuals navigating autoimmune diseases like Lupus, your unwavering support, prayers, and positive vibes are like a lifeline, lifting us more than you may realize.

Your understanding is a source of strength, and your presence on this journey is profoundly appreciated. Thank you for standing by us, making the burden a little lighter, and being an integral part of our resilience.

10. Take Heat.  

Taking heat and holding oneself accountable can be an uncomfortable journey, especially when faced with the blush of embarrassment. The instinct to retreat or hide is powerful, but it is precisely in these moments that growth and a life of integrity are forged. Accountability is the crucible in which our character is shaped, and while the path may be challenging, it is essential for personal development.

In the allegorical tale of YOU GOT THIS, KID! Leadership Advice for Young Leaders,3 the armadillo, Alex, symbolizes resilience with thick skin. This metaphorical armor is developed by understanding what truly matters.

When faced with challenges outside our comfort zone, revisiting our intentions and values becomes the wellspring of courage. For me, grappling with autoimmune disease has fortified my mission and strengthened my values, serving as a steadfast reminder that my purpose lies in serving and aiding others through unwavering integrity.

Family, the cornerstone of my support system, anchors me to what truly matters. Their presence reinforces my commitment to living a life aligned with my mission and values. It’s a challenging yet profoundly rewarding journey that fuels personal growth and ensures that the heat we face refines us rather than scalds us.

11. T.I.M.E. – Today Is My Everything1.  

In the intricate tapestry of time, the present moment stands as the most precious thread—undeniably significant and profoundly impactful. Today is not just a day; it’s an embodiment of opportunities. T.I.M.E. is a poignant reminder to do everything with Intention, Mindfulness, and Engagement.

The past, a repository of memories, is unalterable. What lingers are the moments that stir our emotions, be it joy or sorrow. Meanwhile, the future remains a vast expanse of uncertainty, where studies suggest that a staggering 90% of our thoughts and worries never materialize5. By anchoring ourselves in the present, we liberate our minds from the shackles of an unpredictable future, allowing us to savor the beauty of the now.

I can do whatever I want today

This singular moment is our only guarantee—a canvas waiting for our purposeful strokes. Are we taking positive actions or succumbing to habits that might hinder our future selves?

Every positive step, like engaging with this post to learn about living with autoimmune diseases, is a stride toward progress. Focusing on the present provides the clarity and space to live intentionally, ensuring that each choice contributes to a purposeful and fulfilling journey.

12. Turn Off the Noise.  

The constant barrage of stimuli. The digital age has given us unprecedented access to information and connectivity but has also brought a relentless wave of noise into our lives. From the moment we wake up to when we go to bed, we’re bombarded with news updates, social media notifications, emails, television programs, and a never-ending music playlist.

While it may seem like we’re in control of this digital cacophony, the truth is that it often controls us. We find ourselves tethered to our devices, compulsively checking for updates, and perpetually distracted. This constant state of sensory overload can have detrimental effects on our mental and emotional well-being. For those of us living with chronic illnesses like Lupus, it can exacerbate stress and symptoms.

That’s where the concept of “turning off the noise” becomes not just a luxury but a necessity. Taking deliberate moments to disconnect from the chaos of the modern world can be incredibly healing, restorative, and therapeutic.

13. One Step at a Time.  

When you’re living with a chronic illness, the journey ahead can feel daunting. Managing symptoms, making lifestyle adjustments, and coping with the emotional toll can make the road seem endless. At this point, the wisdom of taking one step at a time becomes invaluable. Breaking your journey down into manageable steps is not just a strategy; it’s a lifeline that can help you navigate the turbulent waters of chronic illness.

Life is full of complexities, and chronic illness introduces a unique set of challenges. However, approaching it one step at a time allows you to gain control and perspective over your situation. Understand that progress is progress, no matter how small it may seem. The incremental changes you make today can add up to substantial transformation over time.

steps

Celebrate the daily victories, whether adhering to your medication regimen, practicing self-care, or simply getting out of bed on a difficult day. Remember, taking one step at a time doesn’t just apply to your physical health; it’s equally relevant to your mental and emotional well-being. 

Dealing with a chronic condition can be emotionally taxing, and it’s crucial to address your mental health with the same measured approach. Seek support when needed, whether through therapy, support groups, or talking to trusted friends and family. Every step you take to prioritize your emotional health is a significant stride toward overall well-being.

Ultimately, the path to wellness, especially when living with autoimmune disease, is not a sprint but a marathon. It’s a continuous journey with its ups and downs. Embrace this long-term perspective and the practice of taking one step at a time. It allows you to build resilience, develop a deeper understanding of your condition, and live a meaningful life at a pace that suits your unique needs.

14. Continuous Learning Fuels the Soul.  

In the ever-evolving landscape of life, the key to staying vibrant and relevant is embracing continuous learning and nurturing an insatiable curiosity. The world is a vast repository of knowledge, and constant learning is a dynamic dance with the ever-expanding boundaries of information. It’s a commitment to growth transcending age, circumstance, and experience.

To stay curious is to cultivate a mindset that sees every encounter as an opportunity to glean insights and broaden perspectives. The fuel propels us to ask questions, seek understanding, and approach challenges with a zest for discovery. 

In a world where change is the only constant, those who embrace continuous learning and stay curious are the ones who not only navigate the currents of transformation but thrive in its embrace.

15. Gumption: Keep Doing the Hard Things.

Gumption is the compass that steers us through the stormy seas of life, urging us to persist and persevere even when the path ahead seems arduous and uncertain. In pursuing our dreams, embracing the hard things is crucial, even when they appear messy or impossible. Your North Star, that unwavering guide within, continues to shine, casting its light through the challenges that may unfold.

The journey toward your aspirations may not always unfold in a neat, linear trajectory; it’s an intricate tapestry woven with threads of hope and potential. As you navigate the twists and turns, remember that the path’s difficulty doesn’t diminish the brilliance of your North Star. 

sign that reads, "#Remember: Fear is a reaction; courage is a decision."

It’s a reminder that the dream is worth every effort, every stumble, and every leap of faith. So, keep doing the hard things, for it is in the crucible of challenges that the true strength of your aspirations is revealed, and the journey becomes a testament to your resilience and unwavering commitment to your dreams.

Living with a chronic illness like Lupus presents unique challenges, but it also offers opportunities for growth, resilience, and transformation. Over 15 years, I’ve learned valuable lessons that have not only transformed my life but have the potential to inspire positive change in anyone facing adversity.

As you navigate your journey, whether related to chronic illness or any other challenge, remember there is always hope. Embrace the path before you, set your values, and follow your North Star; life will reward you far beyond your wildest dreams. 

Thanks for reading to the end 🙂

Dance on, friends,
Karin

In remembrance of Kevin Gerard Moder, M.D.

Your diligence, calm bedside manner, and genuine care for your patients saved my life. Thank you for selflessly serving the lupus community and being a bright light in every life you touched. I’ll forever be grateful. 

Read more about Dr. Moder (Obituary)

Sources

  1. Anti-Time Management: Reclaim Your Time and Revolutionize Your Results with the Power of Time Tipping, by Richie Norton
  2. UCDavis Health: Gratitude is good medicine.
  3. YOU GOT THIS, KID! Leadership Advice for Young Leaders, by Chuck Saia
  4. Intermountain Health: Benefits of Getting a Full Night’s Sleep
  5. National Library of Medicine: Anxious Thoughts

Navigating the Storm: Managing Joint Pain and Inflammation with Autoimmune Diseases for a Better Quality of Life

Navigating the Storm: Managing Joint Pain and Inflammation with Autoimmune Diseases for a Better Quality of Life

Karin W

October 25, 2023

Welcome back, friends! We’re glad you’re here.

I’m Karin Wagner, and I’ve been on a challenging journey with Lupus for 15 years. Throughout this time, I’ve had the privilege of meeting incredible people who have inspired me, including my Invigorate podcast co-host, the Baddest Chaplain Chris Burton. 

We have shared experiences facing various Lupus challenges and are now helping others navigate through their autoimmune journeys. 

Today, we’re talking about a common yet incredibly painful symptom of autoimmune diseases – joint pain and inflammation. For those of us living with these conditions, it’s a daily struggle that can impact every aspect of our lives. The good news is that there are ways to manage this pain and inflammation and improve our overall quality of life.

Understanding the Pain: Joint Pain in Autoimmune Diseases

Joint pain, as many of us know all too well, is a relentless companion in our journey with autoimmune diseases. Joints can swell, stiffen, and become inflamed, making even the simplest tasks feel like monumental challenges. It can affect any joint, from knees and elbows to hands and shoulders.

The pain is often excruciating, making daily life a relentless uphill battle. It’s not just physical; it’s emotionally taxing, too. But today, we want to offer hope and practical advice. We want you to know that you’re not alone, and there are strategies to help you manage this pain and regain control over your life.

The Link Between Inflammation and Joint Pain

Before we dive into those strategies, it’s crucial to understand the link between inflammation and joint pain. Inflammation is the body’s natural response to injury or infection. However, in the case of autoimmune diseases, our immune system mistakenly triggers inflammation without any apparent injury or infection.

This chronic inflammation can cause damage to the joints and surrounding tissues, leading to pain and stiffness. Addressing inflammation is, therefore, key to reducing joint pain and improving overall health.

Dietary Strategies for Reducing Joint Pain

One of the most powerful tools in our arsenal for managing joint pain and inflammation is our diet. What we eat can either exacerbate or alleviate our symptoms.

In my experience, eliminating refined carbs and dairy has been a game-changer. These are often inflammatory culprits. Sugar, refined carbohydrates, and unhealthy fats can contribute to inflammation.

On the flip side, certain foods have anti-inflammatory properties. Incorporating these into your diet can make a significant difference. Foods rich in antioxidants and omega-3 fatty acids can help reduce inflammation. Think leafy greens, fatty fish, and berries.

Supplements for Relief

In addition to dietary changes and exercise, supplements can be a powerful ally in your battle against inflammation.

Turmeric and Ginger: Nature’s Anti-Inflammatory Duo

Turmeric is a bright orange spice, well-known for its powerful anti-inflammatory properties. It contains an active compound called curcumin, which has been extensively studied for its potential to reduce inflammation in the body. Curcumin works by blocking specific molecules that trigger inflammation, providing relief from joint pain and stiffness.

Ginger is another natural remedy that complements turmeric beautifully. It contains gingerol, an active ingredient with potent anti-inflammatory and antioxidant effects. Much like turmeric, ginger can help reduce joint pain and inflammation by inhibiting the same inflammatory pathways.

Both turmeric and ginger are easy to incorporate into your daily routine. You can add them to your cooking, brew them as teas, or find them in supplement form at your local health store. However, before starting any new supplement, it’s always a good idea to consult your healthcare provider to ensure it’s safe and appropriate for your needs.

Vitamin D: The Sunshine Vitamin

Vitamin D is often referred to as the “sunshine vitamin” because our skin can produce it when exposed to sunlight. This essential nutrient is not only vital for bone health but also plays a role in reducing inflammation.

Research has shown that vitamin D can help regulate the immune system and reduce inflammation in the body. Vitamin D deficiency is associated with an increased risk of autoimmune diseases, including Lupus. Ensuring adequate vitamin D levels through a combination of safe sun exposure and supplementation can be a valuable part of your inflammation management plan.

B Vitamins: Building Blocks of Health

The B vitamins, including B1 (thiamine), B2 (riboflavin), B3 (niacin), B5 (pantothenic acid), B6 (pyridoxine), B7 (biotin), B9 (folate), and B12 (cobalamin), are essential for various bodily functions, including immune system regulation. They can also play a role in reducing inflammation.

Supplements can be valuable to your inflammation management plan when living with autoimmune diseases. Turmeric and ginger, with their natural anti-inflammatory properties, can offer relief from joint pain and stiffness. Vitamin D, the sunshine vitamin, helps regulate the immune system and reduce inflammation. B vitamins, the building blocks of health, have shown promise in managing autoimmune disease symptoms, including inflammation.

However, it’s crucial to remember that supplements are not a one-size-fits-all solution. What works for one person may not work for another, and individual needs can vary significantly. Therefore, always consult with your healthcare provider before incorporating new supplements into your routine. They can help determine the right approach to address your unique situation and provide guidance on the most suitable supplements and dosages for you.

Exercise: The Power of Movement

When dealing with joint pain and inflammation caused by autoimmune diseases, the idea of exercise might seem counterintuitive. After all, moving when you’re in pain doesn’t sound appealing. However, regular exercise, even in the form of gentle activities like stretching and walking, can be a game-changer in your journey to manage these challenging symptoms.

Improving Joint Mobility

I can’t stress enough how essential exercise has been for me in managing my Lupus symptoms. While it might seem daunting at first, I’ve found that even gentle movements can have a significant impact on my joint mobility.

Autoimmune diseases can cause stiffness and decreased range of motion in your joints. Regular exercise helps to counteract this by increasing flexibility and promoting better joint mobility. When you incorporate movement into your daily routine, you’re essentially giving your joints a workout, which can help prevent them from becoming overly stiff and painful.

Strengthening the Muscles Around Your Joints

In addition to improving joint mobility, exercise also strengthens the muscles around your joints. These muscles act as a natural support system for your joints, helping to distribute the workload more evenly and reduce the strain on the affected joints.

It’s important to start slowly and gently, especially if you’re new to exercise or dealing with a flare-up. Begin with simple stretches and range-of-motion exercises, and gradually work your way up to more challenging routines. The goal is to find a balance between keeping your joints mobile without causing excessive pain or strain.

Building a Supportive Exercise Routine

Creating a supportive exercise routine involves a few key considerations:

1. Consult Your Healthcare Provider: Before starting any new exercise regimen, it’s important to consult your rheumatologist or healthcare provider. They can help you tailor a program to your specific needs and ensure it’s safe for your condition.

2. Find What Works for You: Not all exercises are created equal, and what works for one person may not work for another. The key is to find an activity that you enjoy and can stick with. This could be yoga, Pilates, Tai Chi, or even gentle walks.

3. Listen to Your Body: Pay close attention to your body’s signals. If you experience pain during or after exercise, it’s crucial to adjust your routine or consult your healthcare provider for guidance. The goal is to feel better, not worse.

4. Set Realistic Goals: Understand that your exercise routine may need to be adapted during flare-ups or on particularly challenging days. Be flexible with your goals, and remember that any movement is better than none.

5. Consistency Is Key: Consistency is essential when it comes to exercise. Even when you’re not feeling your best, doing some gentle stretching or taking a short walk can make a big difference in the long run.

Remember, your journey is unique, and there’s no one-size-fits-all approach to exercise. The most crucial step is to start. Begin with simple, gentle movements, and gradually build from there. Over time, you’ll find that exercise can become one of your most effective tools in managing joint pain and inflammation.

Managing Stress: The Mind-Body Connection

In the realm of autoimmune diseases, stress is often an unwelcome and relentless companion. It’s not just a mental burden; it can significantly worsen inflammation and pain in the body. Understanding and managing the mind-body connection is essential to regain control over your life.

The Impact of Stress on Inflammation

Stress can be a relentless presence for people with autoimmune diseases and chronic illnesses. When stress levels rise, symptoms tend to intensify. It’s a shared experience among those with autoimmune diseases.

When you’re stressed, your body produces hormones like cortisol and adrenaline, which are part of the “fight or flight” response. These hormones can trigger and exacerbate inflammation in the body. For those of us already dealing with chronic inflammation, this stress-induced response can be especially problematic.

Stress can also affect how we perceive pain. When we’re stressed, our pain tolerance tends to decrease, making the pain we experience feel even more intense. Finding ways to manage stress is crucial. One method that has proven incredibly helpful is meditation.

Meditation: A Calming Practice

Meditation involves focusing on a particular object, thought, or activity to train attention and awareness and achieve a mentally clear, emotionally calm, and stable state.

Meditation can be a transformative practice that reduces stress and helps you become more attuned to your body. It’s about creating a mental space where you can let go of worries, fears, and anxieties, even if just for a few minutes each day.

One technique that works well for many people is called diaphragmatic breathing. It involves taking slow, deep breaths by expanding your diaphragm. Inhale for a count of four, hold for four and exhale for four. This simple practice can have a remarkable impact on your stress levels and overall well-being.

Deep Breathing: A Simple Yet Powerful Tool

Deep breathing is another fantastic technique for managing stress. It’s a simple yet powerful tool that can be done anywhere and anytime.

When you practice deep breathing, you’re essentially sending a signal to your brain that it’s time to relax. This results in a lower heart rate, reduced blood pressure, and a sense of calm and relaxation.

Therapy: Seeking Professional Guidance

In some cases, stress may become overwhelming, and it can be beneficial to seek therapy. Therapists can provide valuable support and guidance in managing stress, which, in turn, helps reduce inflammation and pain.

Therapy offers a safe space to explore your feelings and develop coping strategies. It’s not a sign of weakness but a step toward taking control of your mental and emotional well-being.

There are various therapeutic approaches, including cognitive-behavioral therapy (CBT), which helps change negative thought patterns, and mindfulness-based therapies that promote living in the present moment. Finding the right therapist and approach that suits you is essential.

Reclaiming Control

Autoimmune diseases, joint pain, and inflammation may be part of your journey, but they don’t have to define your life. Managing stress effectively is a critical aspect of this process. By practicing meditation, deep breathing, and seeking therapy when needed, you can reclaim control over your well-being.

Remember, the mind-body connection is a powerful one. When you address stress and its impact on inflammation, you’re not only improving your mental and emotional health but also reducing the physical burden on your body.

Practical Tips for Daily Life

Living with joint pain and inflammation can be challenging, but there are practical tactics you can incorporate to ease symptoms.

Heat and Cold Therapy: One of the most accessible and effective ways to alleviate pain is by applying heat or cold to the affected area. Consult with your doctor to determine the best method for your symptoms. Heat increases blood flow and relaxes tense muscles, while cold therapy can help numb the area and reduce swelling.

Assistive Devices: If joint pain hampers your ability to perform daily tasks, consider using assistive devices. Canes, walkers, or jar openers might not be glamorous, but they can provide much-needed support and alleviate pressure on your joints.

Taking Breaks: Taking regular breaks is crucial if your daily activities involve repetitive motions that exacerbate your pain. Rest and stretch your joints to reduce strain and prevent further inflammation.

Getting Enough Rest: Rest is essential for managing pain and inflammation. It allows your body to repair and rejuvenate. Make sure to prioritize getting enough sleep each night.

It’s important to remember that managing joint pain and inflammation is a journey unique to each individual. While these tips can provide relief, it’s essential to consult with a rheumatologist for a personalized treatment plan.

When to Seek Medical Help

Sometimes, despite our best efforts, our symptoms may intensify or interfere with our daily lives. That’s when it’s crucial to seek medical help.

Rheumatologists are vital in developing individualized treatment plans based on your condition and symptoms. They consider factors such as the severity of inflammation, joint damage, and overall health to determine the most appropriate course of action.

In some cases, your rheumatologist may refer you to other healthcare professionals, like physical therapists, occupational therapists, or pain management specialists, who can provide additional support and therapies to help manage joint pain and inflammation.

Regular monitoring and follow-up with your rheumatologist is essential. They’ll help you adjust your treatment plan as needed and guide lifestyle modifications, exercise routines, and self-care strategies, all aimed at improving your overall well-being.

Consulting with a rheumatologist for personalized advice and treatment options is crucial, but remember that staying on top of inflammation at home can also make a significant difference.

Embracing Hope and Relief

Living with an autoimmune disease, joint pain, and inflammation can significantly impact your quality of life. But with the right strategies, the proper support, and the right mindset, you can reduce pain and inflammation. You can regain control of your symptoms and live a higher quality of life.

Remember, you’re not alone on this journey. We understand and care. We’re here to support you, to share our experiences, and to offer hope for a brighter, pain-free tomorrow. Together, we can invigorate your journey and make every step easier. Thank you for joining us today, and we’ll be back with more soon.

Karin

Resources

Making the Most of Medical Appointments: Preparing for Your Appointment & Questions to Ask Your Care Team

Making the Most of Medical Appointments: Preparing for Your Appointment & Questions to Ask Your Care Team

Karin W

October 16, 2023

We only get a precious few minutes to give our Rheumatologists a rundown of our autoimmune disease symptoms and potential triggers, much less thoroughly discuss treatment options. Making the most of the limited time can make the difference in creating the most appropriate treatment plan for you. 

You can do a few things beforehand and during your appointments to effectively communicate with your doctor and get the care you need to live fully with an autoimmune disease. 

The best place to start is to describe your symptoms precisely. Invigorate Ambassador and Co-Host of the Invigorate Podcast, Chris Burton’s tip: Cut to the chase and give them just the facts. There’s not enough time to tell about your symptoms like you’re talking to a friend. 

In this blog, we’ll provide

  • Why and how noting and tracking symptoms can improve communication with your Rheumatologist and care team
  • 8 questions to consider when tracking and discussing your symptoms
  • 5 questions to consider asking your provider during your appointment

How to Get to the Facts: Tracking Symptoms for Better Understanding & Communication With Your Healthcare Team

When dealing with complex diseases and symptoms, recalling and accurately communicating your experiences to healthcare providers can be challenging. That’s why tracking your symptoms daily is a valuable practice that can provide you with a clearer understanding of your condition.

  1. Clearing the Fog: Symptoms of certain conditions, such as chronic pain or autoimmune diseases, can cause brain fog and make it difficult to remember specific details about how you felt in the past. By tracking your symptoms daily, you create a reliable reference point that helps overcome the challenges of memory recall.
  1. Identifying Patterns: Tracking allows you to identify patterns and triggers for your symptoms. By noting what you were doing, eating, or exposed to when symptoms occur, you may discover connections that can help pinpoint the underlying causes. This knowledge can assist your healthcare provider in developing a more targeted treatment plan.
  2. Assessing Progress: Regularly tracking your symptoms enables you to monitor changes over time. You’ll be able to observe whether your symptoms are improving, worsening, or remaining stable. This information is invaluable in evaluating the effectiveness of treatments and interventions.
  3. Facilitating Effective Communication: A documented record of your symptoms ensures clear and accurate communication with healthcare providers. You can share your tracked data during appointments, which helps your provider understand your condition comprehensively and make informed decisions about your care.

To effectively track your symptoms, consider these options:

Before you head into your appointment, review your symptoms log, make notes, and identify the key points to communicate with your provider. Consider the following questions to help you get started!

Here are 8 questions to consider when discussing your symptoms:

  1. When did the pain start? What were you doing when it started?
    Knowing the onset of your pain can provide valuable insights into its potential causes. Was it a gradual onset or sudden? Did it coincide with an injury or specific activity? Recognizing the trigger can assist your healthcare provider in determining the underlying issue.
  2. What does it feel like — sharp, dull, throbbing, achy, tender?
    Describing the quality of your pain can offer additional clues about its nature. Is it a sharp, stabbing sensation or a persistent ache? Does it throb or feel tender to the touch? Providing these details helps your healthcare provider narrow down possible diagnoses.
  3. How severe is the pain on a scale of 1 to 10?
    Quantifying the intensity of your pain on a scale of 1 to 10 helps your healthcare provider gauge the severity and assess the impact on your daily life. Being honest and specific is essential, as this information guides treatment decisions.
  4. How has it changed over the last few days or weeks?
    Tracking changes in your pain over time is crucial. Did it worsen or improve? Has it spread to other areas? Documenting these developments can aid in diagnosing the condition and evaluating the effectiveness of interventions.
  5. Does anything help the pain, such as over-the-counter (OTC) pain or anti-inflammatory medication or exercise?
    Informing your healthcare provider about any measures that temporarily alleviate your pain is essential. It could be using over-the-counter pain relievers, anti-inflammatory medications, or specific exercises. This insight assists in determining what approaches may be practical for managing your symptoms.
  6. How does the pain affect your daily routine?
    Understanding how pain impacts your daily activities allows your healthcare provider to comprehend the overall impact on your life. Does it limit mobility, interfere with work, or disrupt sleep? Describing these effects helps tailor treatment plans to address your specific needs.
  7. Is it worse when you get up in the morning?
    Morning stiffness and increased pain upon waking can occur in many conditions, such as arthritis or musculoskeletal issues. Noting whether your pain is more pronounced in the morning provides valuable information for diagnosis and treatment recommendations.
  8. Do you have any other symptoms that may seem related?
    Pain can often be accompanied by other symptoms that may seem unrelated but could offer additional diagnostic clues—for example, fatigue, sleep disturbances, mood changes, or digestive issues. A comprehensive overview of your symptoms ensures your healthcare provider has a holistic understanding of your condition.

    Open communication and an accurate description of your symptoms are crucial to receiving the most appropriate care. Take note of your experiences, be proactive in seeking medical advice, and work collaboratively with your healthcare provider to find the best strategies for managing and alleviating your pain.

How to Get More From Your Provider – 5 Questions to consider asking your provider during your appointment:

  1. I’m in pain; should I use the joint/muscle or rest it?
    Understanding whether rest or activity is the best approach for managing your pain is crucial. In some cases, gentle movement and exercise can promote healing and reduce discomfort. However, rest may be necessary in other situations to prevent further injury. Your healthcare provider can provide personalized advice based on your specific condition.
  2. How do I treat the pain? (Ice? Heat? Pain relievers?)
    Understanding the most effective treatment options for your pain is essential. Inquire about appropriate methods, such as applying ice or heat to the affected area. Ice can help reduce inflammation, while heat can ease muscle tension. Your healthcare provider may also recommend over-the-counter or prescription pain relievers to alleviate your symptoms.
  3. Are there other things I can do to feel better?
    Beyond conventional treatments, ask your healthcare provider about alternative therapies or complementary approaches that may help manage your pain. These could include physical therapy, acupuncture, massage, or mindfulness techniques. Exploring these options can provide you with a comprehensive pain management plan.
  4. Should I change my diet?
    Diet plays a significant role in overall health, including managing pain and inflammation. Inquire if there are any dietary changes or modifications that may be beneficial for your specific condition. Your healthcare provider may recommend an anti-inflammatory diet rich in fruits, vegetables, whole grains, and healthy fats while limiting processed foods and sugary drinks.
  5. Are there vitamins or supplements I could take to help reduce inflammation?
    Certain vitamins and supplements have shown potential in reducing inflammation and supporting overall health. Ask your healthcare provider if any specific supplements may benefit your condition. Omega-3 fatty acids, turmeric, ginger, and vitamin D are among the supplements studied for their anti-inflammatory properties.

Remember, these questions are a starting point for a productive conversation with your healthcare provider. Every individual’s situation is unique, and your provider will be able to offer personalized advice based on your medical history, symptoms, and diagnosis. You can work together to develop an effective pain management plan by actively engaging in dialogue and seeking guidance.

Invigorate Founder Karin Wagner and Brand Ambassador Baddest Chaplain Chris Burton, co-host a special podcast episode discussing how to Make the Most of Medical Appointments – Preparing for Your Appointment & Questions to Ask Your Care Team.

Let’s figure it out together, my friends.

Keep dancing,
Karin

Resources: Free Tools to Get More out of Medical Appointments

Sources

9 Steps to Prioritize and Take Control of Your Day

9 Steps to Prioritize and Take Control of Your Day

Karin W

October 5, 2023

We’re flying through our routines, grimacing through joint pain, drinking caffeine to fight off relentless fatigue and other complications accompanying autoimmune diseases.

Time is the only irreplaceable commodity, yet so many of us spend it racing through our daily routines without giving it much thought.

While here at Invigorate, we give you the steps, tools, and resources to empower your health journey while navigating autoimmune disease challenges; you may be thinking…

How the heck am I supposed to make these changes when it takes every ounce of my being just to get through the day?  

We hear you. Hang with us…

We have a finite number of hours in a day – 24 hours: eight for sleep, four for eating (including prep and dishes), two for essential self-care, like showering and laundry, and work for eight or so hours…give or take time on each side, we’re left with a few precious hours to spend with family and friends.

The good news is that you can take steps to get some stuff off your plate and prioritize to maximize those hours.

While it takes more initial effort and persistence to change your habits, the payoff will mean more energy and stamina to get more out of those hours – improving your quality time with family and friends.

9 Steps to Take Charge of Your Day


1. Track your steps.

Before cutting out the energy drainers and time suckers, we need to know how we spend our time. We’re generally not great at doing this, especially in our culture of multitasking, distractions, and various vices.

Being specific about each habit you have throughout the day will help you understand how these habits stack up and affect your energy.

Use a journal, an app, or pen and paper to record every task and every step you take throughout the day. Don’t worry; you won’t have to do it for long – two weeks is great, but even a few days of tracking can provide some insight.


2. Group your to-dos into categories.

  • Self-Maintenance: This category encompasses tasks related to taking care of yourself physically, mentally, and emotionally. It may include self-care routines (which can be as simple as showering and brushing your teeth in the morning), personal development, and relaxation.
  • Family: This category focuses on tasks and responsibilities related to your immediate family members, such as spending quality time with loved ones, caring for their needs, and supporting their growth.
  • Exercise: Physical activity is essential for maintaining good health and energy levels. Include tasks related to exercise or any physical activities you engage in to improve your well-being.
  • Work/Commute: This category revolves around tasks related to your job or profession. It includes activities such as work projects, meetings, commuting, and professional development.
  • Social Life: Allocate a category for tasks that involve socializing and spending time with friends or participating in community events.
  • Household: This category encompasses tasks related to managing your living space, such as cleaning, organizing, cooking, grocery shopping, and home maintenance.

As you group your to-dos into categories, pay attention to overlapping tasks. For example, you might eat breakfast on your way to work, combining the self-maintenance and work/commute categories. Similarly, folding laundry while talking with a friend on the phone can fall under both the household and social life categories.

Identifying overlapping tasks can be advantageous as it allows you to maximize your time and accomplish multiple things simultaneously. However, be careful not to overload yourself with too many multitasking activities, as this can lead to feeling overwhelmed and not fully present in any of the tasks.

By grouping your to-dos into categories, you gain insights into where your time and energy are predominantly allocated. This awareness can help you assess if your current time allocation aligns with your priorities and make adjustments if necessary. It also allows you to see if any category consistently takes up more time or energy than desired, helping you identify areas where you may need to reprioritize or seek support.

Remember, these categories are not set in stone; you can customize them to fit your unique circumstances and responsibilities. The goal is to clearly understand how you spend your time and energy and make intentional choices that align with your values and well-being.

3. Identify necessary tasks and energy producers.

Our energy is significantly influenced by the types of activities we do. Some activities uplift us. We feel lighter and more energized. Conversely, other activities or tasks drain our energy, leaving us feeling heavy and depleted.

It’s important to consider how each task affects our energy so we can organize our day to prioritize our values, support our preferences, and propel us through the less energizing tasks.

Take note of how each task affects your energy, no matter how slight the change may be. Did the action give you a lift in energy, even if it was small? Or did it drain your energy? Some tasks may have a neutral effect.

By being mindful of these energy shifts, you can begin to identify patterns and make informed decisions about which tasks are necessary and which ones you can potentially eliminate.

A black woman portraying a lot of positive energy

This process is highly individual and unique to your own experiences and needs. What energizes one person may not have the same effect on another. Therefore, listening to your body, trusting your instincts, and making choices that support your overall health and happiness are essential.

4. Cut out tasks that drain your energy.

Tiredness and fatigue can be all too familiar for those living with autoimmune diseases. That’s why taking control of our energy and time is crucial. We can do this by pinpointing the tasks that drain us and exploring options to eliminate them. While it may not be easy initially, the rewards will be well worth it.

It’s time to take a closer look at how we spend our precious energy. Start by assessing your daily activities. Consider which tasks leave you feeling exhausted or depleted. Is it spending hours on social media? Or perhaps saying yes to every request, even when it stretches you thin? Take note of these energy-draining culprits.

Next, it’s time to prioritize. Determine which tasks are genuinely essential and align with your goals and values. These are the tasks that deserve your energy and attention. Giving yourself permission to let go of the non-essential tasks can be liberating. Remember, this is about preserving your energy for what matters most to you.

As you strive to cut out tasks that drain your energy, being gentle with yourself is crucial. Progress may not always be linear, and that’s okay. Focus on taking small steps and celebrating every win, no matter how insignificant.

In the challenging journey of autoimmune diseases, conserving our energy is a powerful tool. We empower ourselves to focus on what truly matters by eliminating tasks that drain us. So, let us take charge of our energy and create space for the activities that invigorate and inspire us.


5. Set it and forget it. Automate anything you can.

In today’s fast-paced, technology-driven world, automation is paramount. It’s time to take advantage of the wonders of technology and automate those repetitive tasks that drain our energy and consume our precious time.

Imagine never having to scramble to put dinner together or wasting time standing in line at the pharmacy for prescription refills. With Invig Resource: Misfits Market, you can automate your grocery or meal delivery, ensuring that nourishing food arrives at your doorstep without lifting a finger. And why not let a trusty robot vacuum take care of never-ending cleaning tasks?

By automating these daily tasks, we can free up our time and conserve our energy for the things that truly matter. Just think of the stress that will melt away and the extra energy you’ll have to devote to self-care, hobbies, or creating meaningful moments with loved ones.

6. Delegate tasks to others.

Asking for help can be challenging, we know. But let us assure you, my dear friend, that learning to delegate can be a game-changer in reducing stress and conserving energy. Take a moment to identify tasks that can be delegated to others.

It could be asking a coworker for assistance on a project or assigning household chores to family members. And don’t forget about the power of community support.

Invig Resource: Give InKind is an excellent care coordination tool to get support with whatever you need. Let us embrace the power of coordination and delegation. Doing so allows us to focus our energy on what truly matters!

7. Outsource whatever you can.

Outsourcing can be a game-changer when it comes to managing your time and energy. While it may not always be feasible to outsource every task, it is worth considering those tasks that drain your energy or add unnecessary stress to your life. Outsourcing tasks can help reduce your workload, free up valuable time, and allow you to focus on the things that matter most to you.

Consider outsourcing household chores such as laundry, cleaning, or yard maintenance. These tasks often require physical effort and can be time-consuming, especially for individuals with autoimmune diseases or chronic illnesses. By hiring someone to take care of these tasks, you can conserve your energy and allocate it to activities that bring you joy and fulfillment.

Outsourcing can extend beyond household chores as well. You can outsource tasks like grocery shopping, meal preparation, or prescription pickups. These errands can take up a significant amount of time and energy, and by delegating them to someone else, you can save both.

Outsourcing doesn’t have to be expensive or involve hiring professional services. Get creative and seek help from neighbors, friends, or even local community organizations. For example, maybe a neighbor’s child could take out your trash or mow your yard for a small fee.

Additionally, resources or services may be available in your community specifically designed to support individuals with chronic illnesses or disabilities.

When deciding whether to outsource a task, it can be helpful to calculate the cost-benefit. Assess the advantages of outsourcing, such as reduced stress, saved time, and conserved energy, against the expenses involved. Evaluate whether the potential benefits outweigh the cost, both financially and emotionally.

Outsourcing is not a sign of weakness or inability to do things independently. It’s a strategic decision to prioritize your well-being. Then, you can create space for activities that bring you joy, fulfillment, and better overall health.

8. You do what you schedule. Plan out your day.

Now that you have narrowed your list to the necessary to-dos and activities that fuel your energy, it’s time to plan your day. The phrase “you do what you schedule” is incredibly accurate.

By planning what you must accomplish each day, you can note the essential tasks and allocate the necessary time to them. Organizing your day in this way can help you prevent overcommitment, conserve energy, and reduce stress.

One of the biggest hurdles in planning your day is being realistic about what you can get done in a day. It’s essential to be mindful of your energy levels and adjust your plans accordingly. Your priorities might even change throughout the day, depending on how you’re feeling.

To ensure you don’t overcommit yourself, it can be helpful to physically limit the space you use to manage your to-do list. While digital task managers like Microsoft’s To-Do list are convenient, they provide endless space for adding tasks. Consider using a paper calendar, so you have a limited space to fill. This can help you prioritize and focus on what must be done.

9. Reprioritize  

Life is constantly throwing new things at us, and we often have to adjust our plans on the fly. When a new task comes up, take a moment to consider whether it truly belongs on your list.

Evaluate if it aligns with your priorities and belongs to your to-do list. If it does, make a conscious effort to determine where it falls within your priorities. Look at your categories and identify which one the task belongs to. Then, take a long look to see if it can be automated, delegated, or outsourced.

Tip: Do a Double-Take. When a new task comes up, ensure it belongs on your list. Does the request align with your priorities and belong to your To-Do list?

Regularly checking in and reassessing your list is crucial. Priorities can evolve, and what seemed important a week ago might not hold the same weight now. By reevaluating and reprioritizing, you can ensure that your energy and time are aligned with your most important goals and responsibilities.

Productivity Tip: Take breaks!

Remember to give yourself breaks throughout the day. Taking quality mental breaks is essential for maintaining productivity and avoiding burnout. Research has shown that our brains have limited focus time, and pushing ourselves to concentrate excessively can result in impulsive behavior, creative blocks, and poor collaboration.

According to Srini Pillay, M.D., an executive coach and CEO of NeuroBusiness Group, taking “unfocused time” has numerous benefits. It allows our brain to wander, sparking creative thinking and enhancing problem-solving skills.

So, make sure to schedule regular breaks during your day and engage in activities that allow your mind to rest and recharge. Avoid getting distracted by mindless social media scrolling and instead engage in activities that truly help you relax and rejuvenate.

Crafting a Personalized System for Optimal Time and Energy Management

By following these nine steps, you can create a personalized system that works for you and helps you use your time and energy best. Prioritizing is crucial for individuals with autoimmune diseases or chronic illnesses, as it allows you to conserve energy, reduce stress, and focus on the things that matter most to you.

All of this is easy in theory. It’s sticking with it and giving your To-Do list the thought and effort needed to spend your valuable time on the things most important to you.  

Remember, you are not alone in this journey. We are standing beside you, ready to lend an empathetic ear, share helpful tools and resources to empower your journey and provide a supportive community to lean on. Together, we can navigate the challenging terrain of autoimmune diseases and reclaim our lives.

Hair thinning and hair loss thanks to Autoimmune Disease and Chronic Illness effects

Hair thinning and hair loss thanks to Autoimmune Disease and Chronic Illness effects

Karin W

October 3, 2023

Shock and despair washed over me as I stared at the clump of hair in my soapy hand – a fun side effect of my immunosuppressant medication.

Hair loss can be devastating, and while there are alternative options, the experience can pile onto an already emotional load of coping with autoimmune disease symptoms and side effects. 

Alopecia, often associated with autoimmune diseases and chronic illnesses, goes beyond mere hair loss.

Man holding a clump of hair in his hand and distressed about it.

In this blog post, we delve into the complexities of alopecia, medical treatment options, alternative therapies, and ways to help embrace your look if you so choose to rock a new look! 

Understanding Alopecia, Hair Loss, and Hair Thinking with Autoimmune Diseases 

Alopecia areata, a medical term for hair loss or baldness, occurs in small, random areas on our scalp. Our immune system mistakenly identifies the hair follicles and nails as foreign to the body, leading to their attack. 

Researchers have found that alopecia areata results from an autoimmune response targeting hair follicles. This autoimmune response is triggered when the body’s immune system mistakenly identifies the hair follicles as foreign invaders and attacks them.

This mistaken immune response can also extend to the nails, resulting in white streaks across the nail and weakness and brittleness. It is essential to understand that alopecia is not merely a cosmetic issue but a medical condition with underlying autoimmune factors.

There are many classifications of alopecia areata. It all depends on how much hair you’ve lost and where the hair loss is happening on your body. 

  • Totalis means all of the hair on your scalp.
  • Universalis means all the hair on your scalp and your body hair.
  • Diffuse alopecia areata means the hair is thinning rather than falling out in patches.
  • Ophiasis alopecia areata means losing a band of hair on the bottom back sides of your scalp. 

Autoimmune diseases such as psoriasis, thyroid disease, diabetes, lupus, and vitiligo can increase the risk of alopecia. It’s a symptom that should be considered during the diagnosis process and treatment plan. 

Alopecia can also be a side effect of medications taken for autoimmune diseases. For instance, some immunosuppressants, including Methotrexate, can exacerbate hair thinning and loss, like in my case. 

The Nature of Alopecia Flares

The nature of autoimmune diseases like alopecia is such that they tend to have flare-ups and remissions. These flares can be unpredictable and may cause worsening of symptoms. It is common for individuals with alopecia to experience hair loss during flare-ups.

Chris Burton, Invigorate Your Autoimmune Disease Journey Podcast Co-host and brand ambassador, has shared that he experienced hair loss during his flare-ups but that it regrew after the flare ended. This is consistent with autoimmune diseases, where symptoms may wax and wane, often without apparent rhyme or reason.

While some individuals can ride out these flare-ups without significant long-term consequences, others may require more sustained treatment. 

Some strategies that may help manage alopecia flare-ups and promote overall hair health include using gentle hair care products, avoiding harsh treatments such as chemical relaxers or bleach, eating a clean diet, and managing stress levels. 

Additionally, some individuals may benefit from medications or other treatments to help manage symptoms during flare-ups. Working with a healthcare professional to identify triggers for flare-ups and develop strategies to manage symptoms during these periods is essential.

Medical Treatment Options for Alopecia

Treatment options for alopecia vary, and dermatologists play a crucial role in addressing hair loss and nail issues. We always think about dermatologists helping you with your skin, but they specialize in hair and nails too! 

Options such as corticosteroids, minoxidil, phototherapy, and topical immunotherapy may be prescribed based on individual cases. These treatments aim to reduce inflammation, stimulate hair follicle growth, and suppress the autoimmune response that leads to hair loss.

Sometimes, your rheumatologist may prescribe supplements, including folic acid or methofolate, to help mitigate hair thinning and hair loss, even when it’s caused by medications like some immunosuppressants. 

Dermatologists are an excellent resource for developing a treatment plan that suits one’s needs. Each person’s experience with alopecia is unique, and what works for one may not work for another. Therefore, it is essential to have a personalized approach to treatment.

Supplements May Help Promote Hair Growth and Prevent Hair Loss

It’s important to note that when considering alternative therapies for alopecia or hair loss, there is limited regulation when it comes to supplements. This means that the quality and efficacy of these products may vary. However, some supplements have shown promising results in promoting hair, skin, and nail health.

Collagen peptides have gained popularity recently for their potential benefits in supporting healthy hair, nails, and skin. Collagen is a protein that provides structural support to these tissues, and supplementing with collagen peptides can help replenish and support their health. Collagen peptides have also been shown to support joint health, which benefits individuals experiencing joint pain.

When choosing a collagen peptides supplement, it’s essential to look for brands that have certifications such as Certified Paleo Friendly and Keto Certified. These certifications ensure that the product meets specific quality standards. Choosing a non-GMO supplement, free from artificial flavors, sweeteners, and hidden fillers, is also advisable to ensure a clean and pure product.

Invigorate Favorite Resource star with tulip

Sports Research Collagen Peptides is a high-quality collagen supplement that ticks all the boxes. It provides protein and amino acids to support healthy hair, nails, and skin. It is also backed by certifications and is free from unwanted additives, making it a reliable choice.

Another supplement that can help support overall hair, skin, and nail health contains biotin, zinc, and manganese. Biotin, a B vitamin, promotes healthy hair and nails. Zinc and manganese are crucial minerals in various biological processes, including hair growth and maintenance.

Invigorate Favorite Resource star with tulip

Pure Encapsulations Hair/Skin/Nails Ultra is a high-quality supplement that combines biotin, zinc, and manganese to support overall hair, skin, and nail health. It’s essential to choose a reliable brand like Pure Encapsulations to ensure the purity and efficacy of the supplement.

While these supplements can promote hair, skin, and nail health, it’s important to remember that they should not replace a balanced diet and proper medical guidance. It is always advisable to consult with a healthcare professional or a registered dietitian before starting any new supplements, especially if you have underlying health conditions or are taking medication.

Alternative Therapy Options for Alopecia, Hair Loss, and Hair Thinning

However, it’s crucial to note that treatment options may not be effective for everyone. If the body does not respond to medical treatments or if the individual prefers not to pursue them, there are alternative therapy options people have had success with. 

One such alternative therapy that has gained attention in recent years is the use of essential oils.

Essential oils are highly concentrated plant extracts known for their therapeutic properties. They have been used for centuries in traditional medicine practices for various ailments, including promoting hair growth. Research suggests certain essential oils can benefit people experiencing alopecia or hair loss.

In a seven-month study published in the Archives of Dermatology, participants with hair loss who massaged a combination of cedarwood, lavender, rosemary, and thyme essential oils into their scalps experienced new hair growth. To ensure safe application, these essential oils were diluted with milder carrier oils such as jojoba and grapeseed oils.

Cedarwood essential oil is believed to improve blood circulation to the scalp, promoting hair growth. Lavender essential oil has calming properties and may help reduce stress, a factor that can contribute to hair loss. Rosemary essential oil stimulates hair follicles and improves hair thickness and growth. Finally, thyme essential oil has antimicrobial properties that help maintain a healthy scalp environment.

To use essential oils for hair regrowth, it is recommended to dilute them with carrier oils before applying them to the scalp. This prevents any potential skin irritation or sensitivities. A suggested dilution ratio is 2-3 drops of essential oil per tablespoon of carrier oil.

Massage the oil mixture into the scalp using gentle circular motions. Leave it on for at least 30 minutes before rinsing it out. For best results, repeat the process a few times a week.

While individual experiences may vary, some people have reported positive results after using essential oils for hair regrowth. However, it’s important to note that essential oils should not replace medical advice or prescribed treatments. If you are experiencing significant hair loss or alopecia, it’s crucial to consult with a healthcare professional or dermatologist for a comprehensive evaluation and personalized treatment plan.

Additionally, it’s essential to be cautious when using essential oils, as they can be potent and cause allergic reactions or skin irritation in some people. Always perform a patch test on a small skin area before applying essential oils to the scalp.

Alternative Options to Embrace Changing Hair 

If medical or alternative treatments for alopecia aren’t suitable or don’t provide the desired results, abundant alternative options are available to help enhance your appearance and boost your confidence. Two popular options are hair extensions and wigs.

Hair Extensions

Hair extensions can be an excellent choice for those who want to add length, volume, or even just a bit of flair to their hair. With a wide range of colors, textures, and styles, hair extensions offer endless possibilities for trying out new looks. 

Whether you prefer a subtle enhancement or a bold transformation, extensions can help you achieve the desired effect. They can be attached through various methods, such as clip-ins, tape-ins, or bonded extensions, depending on your preference and the expertise of a professional stylist.

When dealing with hair that breaks off but doesn’t entirely fall out, hair extensions can be a viable option to help achieve the desired length and volume. Hair extensions come in two main types: synthetic and human hair.

Synthetic hair extensions are crafted from artificial fibers and are generally less durable and long-lasting than human hair extensions. While they are more affordable than natural hair extensions, synthetic options have drawbacks. They can be challenging to care for and style, and they may not give as natural of a look as human hair extensions.

On the other hand, human hair extensions, also referred to as natural hair extensions, are made from real human hair. These extensions can be styled and treated like your hair, allowing seamless integration. Human hair extensions are more expensive than synthetic counterparts due to their quality and longevity. However, they offer a more natural appearance and can last longer with proper care.

One of the essential advantages of human hair extensions is their ability to blend effortlessly with natural hair, providing a seamless and natural look. They can be dyed, heat-styled, and even washed like your own hair. This versatility allows for greater flexibility in achieving the desired style or look.

One note to consider: synthetic hair extensions are typically more challenging to maintain. They can easily tangle, resulting in frequent split ends. Split ends occur when the tips of the hair look divided and lack the smoothness and natural appearance of undamaged hair.

When considering hair extensions for hair that breaks off but doesn’t entirely fall out, it’s crucial to determine your priorities. If natural and long-lasting results are essential to you, investing in human hair extensions may be the best choice despite the higher initial cost. However, if affordability is a primary concern and you’re willing to put in extra effort for maintenance, synthetic hair extensions could be an alternative option.

Ultimately, the decision between synthetic and human hair extensions should be based on individual preferences, budget, and desired results. It’s advisable to consult with a professional stylist or extension specialist to assess your specific needs and ensure the best outcome.

Exploring Wig Options

Wigs are another alternative option that can completely transform your appearance. They offer a quick and convenient solution for individuals experiencing significant hair loss or wanting to experiment with different hairstyles. 

Wigs come in various styles, lengths, colors, and materials, allowing you to change your look or mimic your natural hair completely. They can be made from synthetic fibers or natural human hair, allowing for customization based on your preferences and budget. High-quality wigs are designed to provide a comfortable fit, natural appearance, and style freedom.

Inexpensive Synthetic Wigs: These are often cheaper but may be itchy and hot. They suit individuals requiring a temporary solution or experimenting with different hairstyles without investing in a high-cost wig.

Lace Front Synthetic Wigs: Slightly more expensive than basic synthetic wigs, lace front synthetic wigs offer a more natural look. The lace front allows for a seamless hairline, making distinguishing the wig from natural hair harder.

Human Hair Wigs: While they require more maintenance and upkeep, they are worth investing in for individuals who want to wear them regularly. These wigs offer the most natural appearance and can be styled and cared for like real hair.

Choosing the right wig option depends on individual preferences, budget, and lifestyle. It is recommended to consult with a wig specialist to find the best fit and style that suits your needs.

Both hair extensions and wigs can offer versatility and self-expression, allowing you to explore different styles and looks that suit your personality and desired image. They can enhance your existing hair or completely cover any areas affected by alopecia. Additionally, these options provide a sense of control and empowerment, as you can switch up your look whenever you please.

Working with a professional stylist or consultant specializing in hair extensions or wigs is essential to ensure the best fit, style, and maintenance. They can guide you in choosing the right option for your needs and offer suggestions on care and styling techniques.

Experimenting with hair extensions or wigs can be a fun and confidence-boosting experience. It’s a chance to explore different looks, enhance natural beauty, and embrace uniqueness. Don’t be afraid to step out of your comfort zone and try something new – you never know how it might positively impact your self-esteem and overall well-being.

Finding Strength and Support with People Who Understand Autoimmune Disease

Hair loss can be a significant emotional challenge, often impacting our identity. However, it’s essential to remember that we are not alone on this journey. Through the Invigorate podcast, we aim to bring the autoimmune community together by sharing valuable information and personal stories. Embracing who we are in any season of life can be a powerful act of self-acceptance and strength.

Invigorate community member and brand ambassador Heather Knox shares her journey of embracing her shaved head and provides tips for feeling better with a new look, including fun glasses, makeup experimentation, and accessorizing with jewelry on the Invigorate Your Autoimmune Disease Journey Podcast.

Connecting with others who have experienced alopecia or other autoimmune conditions can provide a sense of belonging and understanding. The Invigorate Facebook group is valuable for those seeking emotional support and a safe space to share their experiences.

Embracing our unique appearance and finding support within the community empowers us to overcome the emotional struggles that may accompany hair loss. Remember, you are not alone – the Invigorate community is here to strengthen the autoimmune community by sharing stories, information, and hope. 

Sources

This blog post draws inspiration from various sources, including personal experiences, medical professionals, and reputable autoimmune disease organizations.

Listen to the “Coping with Hair Loss and Alopecia with Autoimmune Diseases” discussion on Spotify!

Prevention magazine: Herbal Remedies ALL-NATURAL CURES, July 2023

Hair Extensions Direct, What is Hair Extension? Here’s Everything You Need to Know – Hair Extension Direct

Disclaimer: Invigorate is supported by its audience. We may earn an affiliate commission when you purchase through links on our site.

Crafting Your Autoimmune Flare Care Strategy | Tips & Tricks for Managing Autoimmune Disease Flares

Crafting Your Autoimmune Flare Care Strategy | Tips & Tricks for Managing Autoimmune Disease Flares

Karin W

September 25, 2023

Living with an autoimmune disease can be akin to a relentless tug-of-war between self-care and life’s incessant demands. The daily battle with debilitating symptoms can be physically taxing, yet we often push ourselves to the limit.

As the saying goes, “If you neglect wellness, you will be compelled to find time for illness.”

People with autoimmune diseases grapple with extreme fatigue as their bodies are constantly on high alert due to an overactive immune system. The complexity and unpredictability of autoimmune diseases can make daily living challenging and stressful.

However, recognizing the signs of imminent flare-ups can help reduce anxiety and facilitate better preparation for potentially rough periods.

But how do you navigate through these flare-ups and create a care strategy that works for you? Here are nine tips and tricks to help you craft your own personalized autoimmune flare care plan.

  1. Track your symptoms and medication side effects
  2. Let Go of Guilt
  3. Communicate Openly
  4. Plan for Your Recovery
  5. Prioritize Self-Care
  6. Create a Comforting Space
  7. Find an Outlet
  8. Connect with Other Strivers Who Can Relate to Your Journey
  9. Continue to Explore, Discover, and Grow

Autoimmune Disease Management Tips:

1. Track Your Symptoms & Medication Side Effects

With time and experience, we become more attuned to our bodies and can identify potential triggers and trends.

Keeping a record of your symptoms, medication, diet, exercise habits, and potential triggers can provide valuable insights into your body’s patterns and help predict future flare-ups.

With the help of your healthcare provider, tracking symptoms can help you spot early warning signs, manage disease activity, and minimize exacerbations. This forms the basis of a Flare Care Plan, a strategy you can rely on during flare-ups.Female writing down her autoimmune disease symptoms and medication side effects

Stick to the facts when recording symptoms. Describe the symptom in detail, duration, and frequency. Having a precise log of symptom history can help you and your provider identify patterns and potential autoimmune disease triggers.

In addition, being aware of typical triggers such as stress, lack of sleep, and dietary changes can help you take preventive measures before flare-up strikes.

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Clever Fox Medical Notebook
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2. Let Go of Guilt

We can adopt a healthy lifestyle, track our triggers, and stay on top of medications, but flare-ups may still happen.

It’s important to remember in these moments that we are not to blame. Autoimmune diseases are complex and unpredictable, and flare-ups are a natural part of the journey. No matter how diligent we are, there will be times when our bodies push back.

At Invigorate, we encourage you to embrace self-compassion in the face of flare-ups and remind yourself that you are not alone on this journey.


3. Communicate Openly

Sharing your condition with others can be a decisive step towards fostering understanding and compassion within your community. Opening up about a chronic illness is undoubtedly an intimidating prospect, but establishing a support network can make a world of difference on your journey.

This support network extends beyond your personal relationships and includes your workplace. If your autoimmune disease affects your job performance, it’s essential to have open and honest discussions with your employer and colleagues.

Sharing your condition and any accommodations you may require during flare-ups can prevent misunderstandings and ensure a supportive work environment. Remember, your health should never be a cause for shame or secrecy.

Equally important is letting your loved ones in on your condition. Communicating your needs and possible support requirements during flare-ups can help reduce stress and enable your close ones to offer the support you need. Whether it’s assistance with daily tasks, emotional support, or simply understanding when you need rest, having a solid support system can make a world of difference.

We understand that reaching out and sharing your experiences can be both vulnerable and empowering. At Invigorate, we encourage you to embrace your strength to open up about your condition.

By sharing your journey, not only can you alleviate the burden of carrying it alone, but you also help educate others about autoimmune diseases.

Your words can raise awareness, dispel misconceptions, and build a community rooted in compassion and understanding.


4. Plan for Your Recovery

When a flare-up strikes, it can feel overwhelming, leaving you grappling with the simplest tasks.

That’s why it’s crucial to plan your recovery ahead of time and enlist the support of your loved ones.

Knowing what help you need during a flare-up and openly communicating it can help reduce stress and create a solid foundation for recovery.

Consider creating a list of tasks that friends or family can help with during these challenging times. It can be as simple as reaching out for grocery shopping, preparing meals, or taking care of household chores.

This list gives you a clear sense of what needs to be done and empowers your loved ones by giving them specific ways to support you.

Remember, you don’t have to face the challenges of a flare-up alone. Lean on your support network and trust that they are there to help. Whether it’s running errands, providing emotional support, or simply being present, the assistance provided by your loved ones can make a significant difference in your recovery process.

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Organize Support with Give InKind (Free)
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5. Prioritize Self-Care

During a severe flare-up, it’s essential to prioritize self-care above all else. The intensity of these episodes can be incredibly disruptive, often causing us to reevaluate our approach to life. Instead of pushing yourself too hard and risking prolonged recovery periods, it’s crucial to slow down and shift your focus to self-care.

Finding a balance between work and personal life becomes even more critical during flare-ups. Recognize that your health should always take precedence, and allow yourself the time and space to rest and heal.

This may mean temporarily stepping back from work obligations or seeking your employer’s support to adjust your workload. Remember, taking care of yourself is not a luxury; it’s necessary for effectively managing your autoimmune disease.

Maintaining a relaxed attitude during this time is also crucial. Stress and anxiety can worsen flare-ups and hinder the healing process.

Explore relaxation techniques that work for you, such as deep breathing exercises, meditation, or engaging in activities that bring you joy and peace. Embrace the power of self-care rituals, whether indulging in a warm bath, spending time in nature or seeking solace in hobbies or creative outlets.

It’s not about achieving perfection or pushing through the pain; it’s about listening to your body, honoring its needs, and giving yourself the compassion and care you deserve.


6. Create a Comforting Space

A comforting space can make a world of difference during long-lasting flares. When you’re dealing with chronic pain or illness, your surroundings can feel suffocating when you’re stuck at home or in bed. You can positively engage your senses and find solace by intentionally creating a calming environment.

Using technology to support your well-being is one way to create a comforting space. Podcasts and meditation apps can be beneficial in redirecting your focus and promoting relaxation.

Explore different genres of podcasts to find topics that resonate with you, whether it’s storytelling, guided meditations, or soothing music. Similarly, meditation apps offer many guided practices to help calm your mind and body. Remember to choose content that aligns with your personal preferences and needs.

Another way to enhance your calming space is by making minor changes to your physical surroundings. Consider using soft lighting, such as string lights or dimmable lamps, to create a gentle and cozy ambiance. Soft lighting can have a soothing effect on your senses, helping you relax and unwind. Additionally, lighting candles with calming scents, like lavender or chamomile, can create a peaceful atmosphere and promote a sense of tranquility.

Don’t underestimate the importance of comfort in your space. Invest in comfortable bedding, such as soft blankets and pillows, that can provide relief for your body during flares. Having a comfortable place to rest and relax can significantly reduce discomfort and improve your overall well-being.

Everyone’s needs and preferences differ, so feel free to experiment and adjust your calming space according to what works best for you. Whether incorporating nature-inspired elements, playing soothing background music, or adding a touch of your favorite color, personalizing your space can make it even more comforting.

You can transform your surroundings into a sanctuary of peace and tranquility by intentionally creating a comforting space. This dedicated space will provide relief during flares and serve as a refuge where you can recharge and find comfort amidst challenging times. So, take the time to create a space that nurtures your well-being and brings you the comfort you deserve.


7. Find an Outlet

In addition to providing an enjoyable escape from the challenges of chronic illness management, finding a creative outlet can benefit your mental health.

Engaging in activities like writing, painting, or playing music allows you to channel your emotions and express yourself uniquely and meaningfully.

For example, writing has been proven therapeutic and cathartic for many individuals. Keeping a journal can provide a safe space to unload your thoughts and feelings, helping you gain clarity and perspective on your experiences. It can also record your journey, allowing you to reflect on how far you’ve come.

Painting or engaging in other forms of visual art can be a powerful way to externalize your emotions and create something beautiful in the process. The act of putting brush to canvas or pencil to paper can be meditative, helping you focus on the present moment and find solace in the creative process.

Playing music can be incredibly therapeutic, whether as an instrument or simply listening to your favorite tunes. Music uniquely can tap into our emotions and transport us to different states of mind. Playing an instrument can provide a sense of accomplishment and allow you to express yourself through melodies and rhythms.

Of course, finding a creative outlet doesn’t have to be limited to artistic pursuits. Spending quality time with loved ones can be just as valuable.

Whether engaging in meaningful conversations, sharing laughter, or simply being in each other’s presence, connecting with others can provide a sense of belonging and support during challenging times.

Remember, the goal of finding an outlet is not necessarily to become a professional artist or musician but rather to find a source of joy and self-expression. So, explore different activities, experiment with various mediums, and embrace the process without judgment. Finding an outlet that resonates with you can cultivate a healthier state of mind and enhance your overall well-being.


8. Connect with Other Strivers Who Can Relate to Your Journey

Living with an autoimmune disease can indeed be a challenging and isolating experience. The journey can often feel overwhelming, as it involves navigating through various symptoms, treatments, and lifestyle adjustments. However, it’s important to remember that you are never alone in this journey.

Connecting with others who share similar experiences can provide a tremendous sense of community and support. These individuals understand firsthand the unique challenges and frustrations of living with an autoimmune disease. You can find comfort, empathy, and a sense of belonging by sharing your stories, struggles, and triumphs with others.

Through our Facebook Community and virtual events, you can engage with a diverse community of individuals who are facing similar challenges. Whether you’re seeking advice, sharing coping strategies, or simply looking for a listening ear, you’ll find people who are ready to offer support and understanding.

Together, we can embark on this path of living with an autoimmune disease. By supporting and empowering each other every step of the way, we can navigate through the ups and downs, celebrate victories, and find solace in knowing that we are not alone. Invigorate is here to be your companion, providing a safe space where you can connect, thrive, and find the strength to face the challenges that come your way.

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Let’s do this together!
Invigorate Facebook Community

Living with an autoimmune disease presents its fair share of challenges, but it’s crucial to remember that you are not alone. You can navigate flare-ups more quickly and confidently by implementing the tips and strategies mentioned in this article, such as tracking symptoms, releasing guilt, communicating openly, planning for recovery, and prioritizing self-care.

Invigorate is here to support you every step of the way, providing a community and resources to help you thrive despite the complexities of autoimmune diseases. Remember, you have the power to take control of your health and well-being, and you deserve support, understanding, and compassion throughout your journey.


9. Continue to Explore, Discover, and Grow

It’s essential to continue educating yourself about your condition and staying connected with others who can relate to your experiences. By being proactive and advocating for yourself, you can ensure your needs are met and you receive the care you deserve.

Moreover, as research and medical advancements continue to progress, there is hope for better treatment options and potential cures for autoimmune diseases. It’s essential to stay informed about new developments in the field and stay hopeful for a brighter future. In the meantime, remember to take care of yourself and prioritize your well-being. Don’t be afraid to reach out for support when needed, whether from friends, family, or a professional therapist.

Lastly, always remember that your autoimmune disease does not define you. You are more than your symptoms and diagnosis. You are a unique individual with strengths and passions that go beyond your health. Don’t let your condition keep you from living a fulfilling and meaningful life.

Embrace your journey and all it entails, as it can shape you into a stronger, more resilient person. Keep fighting, stay positive, and remember you are not alone on this journey. Together, we can raise awareness and create a support community for those living with autoimmune diseases.

Let’s continue to share our stories, educate others, and advocate for better care and understanding of these complex conditions. So keep pushing forward, never lose hope, and know you are not defined by your illness. Your strength and resilience will guide you through this journey and help you live life to the fullest despite any challenges that may come your way.

Keep Striving!

Karin

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Disclaimer: Invigorate is supported by its audience. We may earn an affiliate commission when you purchase through links on our site.

5-Step Resilience Plan – A Toolkit to Put Yourself Back Together After “Failure”

5-Step Resilience Plan – A Toolkit to Put Yourself Back Together After “Failure”

Karin W

September 19, 2023

Failure is inevitable. It comes with the territory of developing habits and routines that cultivate health and wellness. More directly, failure means you tried something and now have an experience you can learn from, which is the foundation of personal growth and development.

Our mantra at Invigorate is to take it one step at a time. The idea is that not if but when we misstep, we can brush it off without a big deal and get back on track with our next step or the one after that if we need a beat. Taking sufficient time is key to processing setbacks in a healthy way.

Here are Five Steps to help you Cope with and Process Uncomfortable Emotions after a learning experience.

  1. Reframe How You Think About Failure
  2. Develop One or Two Anchor Thoughts to Help Ground Yourself
  3. Give Yourself Some Space to Decompress
  4. Reflect on the Experience
  5. 5-4-3-2-1 Go!

Step 1: Reframe How You Think About Failure – Shift to a Growth Mindset

Failure is an inevitable part of life, especially when making changes and taking risks. Thinking of failure as an opportunity to learn something new can help you keep an open mind to new ideas and ways of doing things.

When we try something new, of course, it will be a disaster. We’ll trip ourselves up and get in our own way, but we’ll get through it and come out the other side better for it.

By focusing on our efforts vs. the outcome, we focus on our journey vs. the destination.

“It is good to have an end to journey toward; but it is the journey that matters, in the end.”

Ernest Hemingway

Our experiences are the primary way we learn and grow. They challenge and stretch us. It’s a fact of life: we’ll make mistakes along the way. That makes life grueling at times but more rewarding than ever imagined.

We must push ourselves out of our comfort zone and be prepared to fall. The more things we try and fail at, the more we’ll learn and grow.

Even though we know failure is inevitable and critical for our development, it doesn’t change the fact that failure doesn’t feel good when it happens. However, we can tap into a couple of tools to help us cope with the difficult emotions that often come with setbacks.

Step 2: Develop One or Two Anchor Thoughts to Help Ground Yourself

After particularly rough falls, a reminder that failure is the key ingredient to growth and progress can be invaluable to getting you back on your feet.

Anchor thoughts or affirmations reinforce our values and why we continue to challenge ourselves. They’re an act of self-care as they help us process anxiety and other uncomfortable emotions to regain perspective.

But when our energy is low, finding a silver lining is often a heavier lift than we’re willing to carry.

Writing down inspirational quotes or encouraging notes ahead of time can increase your likelihood of referring to positive messages when you’re disappointed or frustrated.

Woman sitting at desk writing in notebook

Here are some Affirmation Examples:

  • “I don’t know what will happen next, but I’ll learn something from this experience.”
  • “I don’t keep a scorecard.”
  • “I treat my body with love and respect.”
  • “I am committed to my health.”

Spending a minute or two reading them out loud and internalizing their messages can help shift your mindset. It may feel uncomfortable at first, but it should get easier with time.

Try different ones if they don’t or aren’t resonating with you. They should change with you and your experiences.

Steps to Grow Your Affirmation Stamina:

  • Read your affirmations silently.
  • Read them aloud.
  • Read them allowed looking in a mirror.
  • Memorize them and say them to yourself throughout your day.

“Together, with honest self-reflection and concrete action steps, positive affirmations can be a wonderful part of one’s behavioral change regimen.”

Anna Yusim, M.D.

By getting yourself to a more positive state, you set yourself up to reflect openly. That’s where vital learning and growth happen.

Step 3: Give Yourself Some Space to Decompress

You dropped the ball, royally embarrassed yourself, and want to bury your head in the sand for whatever reason. After experiencing a tough setback, giving yourself time and space to decompress is critical to process emotions.

Allow yourself some time for self-care and engage in activities that help you relax and take your mind off things healthily. You can refer to 10 Tools to Nurture You Through Autoimmune Disease Flares for ideas on how to unwind mentally.

Young man sitting outside an industrial area staring off into the distance

Give yourself time and space to process your emotions without feeling pressured or rushed into doing something else right away. Our general rule is to give yourself space for at least 24 hours. A good night’s sleep can help bring logic and clarity to what previously seemed to be a dramatic situation.

If you feel stuck in a loop of negative emotions, try breathing deeply and focusing on your breath for a few minutes. This will help lower blood pressure and release tension, allowing you to shift into a more relaxed state.

Reference the Invigorate Mental Health Step for breathing and other mindfulness tools to help you decompress.

Step 4: Reflect on the Experience

It’s important not to do this step until you’ve had ample time to decompress. If we start the process too early, we don’t have the clarity, nor can we gain true insights from the experience.

After you have time to decompress, perhaps for a few hours or days, reflect on the experience. It might sound counterintuitive, but one of the best ways to overcome disappointment is to think about it.

Sitting with our uncomfortable emotions is uncomfortable, but when we do, we heal and grow.

This is especially helpful if you feel like your emotions are getting in the way of clear thinking. It’s OK to start, stop, and revisit. In fact, it’s great because your perspective will change, and your insights will deepen.

Writing down our thoughts helps us process the situation.

Like doing a complicated math problem, breaking it down on paper helps our brains organize and make sense of the information to solve it.

There’s no need to get hung up on the details. Let your thoughts flow without judgment; the insights will present themselves if you’re open and honest.

Reflecting on failure involves asking questions like:

  • What happened?
  • Why did this happen?
  • What can I learn from this?
  • What do I need to change to improve my chances of success next time?
  • What can I do to best move forward?

Simply start writing in a journal or talking to a friend. Don’t get hung up on details. You may surprise yourself with what you uncover when you let your thoughts flow freely.

If reflection feels daunting, setting a timer for 5-10 minutes can be enough to get started and potentially through your process.

Reflection is a powerful tool for learning. It allows us to gain new insights, connect past and current experiences, and see things from different perspectives.

By reflecting on failure, we can learn from our mistakes and improve our chances of success in the future.

Step 5: 3-2-1-Go!

We shifted our perspective on failure, decompressed, and processed the situation, and now it’s time to get back on our feet and go again. But maybe you’d rather revisit the decompression state and throw on a couple more nostalgic shows…

As we stall, our motivation dwindles, and depression symptoms can creep in. It’s a continuous tug-of-war between temptation and doing the thing that will get you back on your feet.

“5-4-3-2-1, Go!”

That simple saying can help get you moving, and once you’re in motion, momentum builds rather quickly because taking action fuels motivation. The 5-second rule can be applied to anything, from getting out the door to starting a project.

When we’re in the moment, emotions influence our decisions. But when you take action, those emotions subside, leaving you with a clear mind to make better decisions.

Failure is a Requirement to Make Progress and Grow

Remember, failure is not the end but a stepping stone toward growth and personal development. When you have setbacks or missteps, a resilience plan can help you bounce back quicker by giving you a roadmap for handling setbacks.

Planting seed in garden with bare hands patting the dirt around the sprout

By reframing how you think about failure, giving yourself space, developing anchor thoughts, reflecting on the experience, and taking action, you can put yourself back together to continue your journey more experienced and better off than before your “failure.”

Continuous failure is a vital part of a successful, fulfilling journey. We can make the most of our experiences by learning to navigate them with acceptance and curiosity. When we learn to accept failure, we can move forward with an open mind and heart, knowing it’s all part of the process.

Let’s give it a 3-2-1 -Go!

Keep Striving, Survivors,
Karin

Sources

Guiding Principles: A Realistic Approach to Autoimmune Disease Remission & Better Health

Guiding Principles: A Realistic Approach to Autoimmune Disease Remission & Better Health

Karin W

September 8, 2023

Our guiding principles provide direction and support to empower your journey in navigating autoimmune disease and chronic illness. 

We embrace an incremental approach to holistic health, disease management, and remission. Our programs are built on a foundation of small, simple lifestyle changes that anyone can do anywhere. 

A common misconception about autoimmune diseases and chronic illnesses is that you have little control over your health trajectory. Plan for a life of chronic pain, medications, and appointments. In reality, while you may have a steeper hill than others, you do have the power to reduce disease activity and, ultimately, achieve remission.

“We have a totally different diet, with processed foods, additives and fast foods. We’re more sedentary. There’s an obesity epidemic. We have a different pattern of infectious agents, even pre-COVID-19, with more emerging yearly. The environment is noisier, and there are more stressors.”

-Frederick Miller, M.D., scientist emeritus with the Environmental Autoimmunity Group at the National Institutes of Health

While your remission is our mission, we’re not focused on the destination. We’re dialed in on the journey. We focus on systematic, incremental, achievable steps to improve your health and well-being. 

We provide the resources to empower your journey that’ll be shaped by your experiences, specific situations, personalities, and preferences. 

The ideal path to remission is sustainable. You don’t beat autoimmune disease in one day; you take it one step at a time, #oneaction at a time, until living a healthy, fulfilling life is second nature. And one day, you’ll realize how far you’ve come. We promise. 

A Different Approach to Creating Sustainable Habits

Five stages of a sprouting plants in soil, sunlight.

We focus on one step at a time, but even that can sometimes feel daunting. The good news is that we can break it down even further.

Rather than making dramatic lifestyle changes all at once, we focus on small things you can do to change your behavior and habits. Take it one step at a time and find the small victories in everyday moments, even if they’re micro-movements toward your goal.

This approach allows you to build healthy habits that stick with you for the long haul. 

Invigorate’s Guiding Principals are guidelines intended to help empower your journey but by no means dictate it. After all, we know a one-size-fits-all approach never works, so lean in and adjust, swap, modify, or do whatever you need to to make the most out of your Invigorate experience.  

Invigorate Guardrails to Empower Your Journey

1. Dial in on Your Journey, not the destination.

None of us know how long we’ll be here, and as much as we want to know where our paths will lead us, the only time guaranteed is now. This moment now is our life. 

Young woman leaning out car window as she's pulled over, making a heart with her hands. Mountains in the distance.

We strive to shift depressed thoughts of the past and anxious thoughts of the future to considerate thoughts of the present. We can take one step toward a more meaningful future by focusing on the present. 

Are you on a path that empowers your journey or one that makes it more challenging? Every decision we make and every action we take slowly but surely shapes the course of our journey.

Sometimes, we unknowingly tread on rough terrains that make our voyage harder. But remember, you have the power to change the path you’re on. Ask yourself, am I taking steps to better my situation? Remember, we only have this moment. The right time isn’t tomorrow, next week, or in the new year – it’s right now. Make the choice to foster self-care, give yourself the compassion you tirelessly give to others, and you’ll find the strength to navigate even the toughest of journeys.

2. It’s Your Journey.

The first step to better health is understanding that you have the power to choose. There are many paths and routes to remission, but your journey is unique. No matter where you’re in life now, know it’s never too late to change for the better.

Narrowly winding road with fall-colored trees on either side.

Each of us has our own experiences and challenges. Our perception of those experiences shapes our unique journeys. The power is in your hands to choose the direction you want to go.

Health is more than physical and emotional well-being—it’s also about understanding how we are connected to the world around us. Practicing healthy habits and self-care allows us to deepen our connection with nature, society, and our communities.

It’s not a race since we’re on different paths, but we can support one another in our winding journeys. It’s hard to make the determination and take the steps towards a healthier life. We can be our own obstacle, but be patient with yourself, focus on the next step, and lean into our community for support. 

3. We’re in this together.

The complexity and intensity of autoimmune diseases can fuel depression and isolation. These systemic diseases are not fully understood, making them hard to explain. Survivors tend to withdraw when they don’t have a supportive network.   

Five sets of hands, each cupping a sprouted plant in soil in a circle.

While our journeys are unique to us and our experiences, that doesn’t mean we must go through this alone. Our Invigorate community can relate and empathize with the challenges and uncertainties of navigating autoimmune diseases and chronic illnesses. We give each other the grace to fall, support to get back up, and encouragement to try again. 

Engage with our supportive community. We share our experiences and tips and have some laughs along the way. Together, we can overcome the challenges of autoimmune diseases and thrive, living life on our own terms. We can do this, and we don’t have to do it alone.

4. Unleash your inner explorer and get curious.

As you embark on this journey of personal growth and self-discovery, it’s crucial to approach it with an open mind. Something may not resonate with you now, but it might resonate with you down the road. 

Our perspectives change as we experience more, especially when managing the challenging health situations accompanying autoimmune diseases and chronic illnesses. An open mind can stretch us to think beyond our current thoughts. 

Try to channel your inner explorer as you journey through the labyrinth of autoimmune diseases. Embracing a spirit of curiosity can be a powerful tool in this voyage. Ask questions, dig deeper, research, and seek out multiple perspectives. This isn’t about finding quick fixes but about gaining understanding. It’s about exploring the many pathways to wellness and identifying what works best for you.

Four kids inspecting branches and pine needles with a magnifying glass.

Curiosity can also lead us to self-compassion, a trait often overlooked but critical in our journey. It involves being gentle with ourselves when we stumble and embracing our imperfections. In our Invigorate community, we encourage everyone to be kind to themselves, to recognize their efforts, and to applaud small victories. Remember, it’s progress, not perfection, that we seek.

Lastly, curiosity urges us to embrace change. Autoimmune diseases can be unpredictable, but we can adapt to new routines, treatments, and lifestyle changes with a flexible mindset. Change can be daunting, but it also brings opportunities for growth and reinvention.

So put on your explorer’s hat, stay curious, and open yourself to the remarkable journey of self-discovery.

5. Stick to one or two steps at a time. 

This moment now is when we can drive change by dialing in our thought patterns and daily habits. Slow and steady wins the race. We recommend focusing on one or two steps at a time, even when you can take on more. 

For example, if you want to incorporate diet and lifestyle changes, start with a few simple ones, like drinking more water or going to bed 30 minutes earlier. Once those habits become second nature, then add more. Don’t overwhelm yourself by trying to do too much at once!

Stone steps leading up through wooded area towards sunlight.

Or, if you want to take a couple of steps down the same path, ensure one is an easier step to take. For example, if you’re looking to double down on physical activity, one step could be incorporating a stretching routine, and another could be walking three times a week.

Remember that the goal is to find sustainable ways to create healthy habits. This means taking one step at a time and adjusting as you go. Don’t be afraid to experiment!

While incremental change feels tiny, it adds up to big results. Trust the process! You are capable of so much more than you give yourself credit for. We believe in you. Now, let’s start on this incredible journey together!

Tip: Having an accountability partner or supportive friend can be key to helping you get over hurdles. Join our Facebook community for support, encouragement, and grace in navigating your journey.

6. Get comfortable being uncomfortable. That’s when change happens.

Systems make change possible. When navigating life’s complexities with an autoimmune disease, mindset is everything. It’s about leaning into the sweet spot between comfort and discomfort. That’s where growth and transformation happen.

It’s about challenging yourself to step out of your comfort zone, one small step at a time. You’ll be uncomfortable sometimes, but embrace the discomfort of growth and learning as part of the journey.

While each step individually is critical, having a plan and structure is also critical to success. Using systems and processes to simplify your life can help you embrace change. It also helps create structure, making it easier to get through tough health days.

If you don’t plan how to do it, you’ll likely give up before you start. Willpower is not a thing; we’ll fail if we rely on it. Discover the 6 Sources that Influence Our Behavior and learn how to control them for a higher chance of success.

Everything affects everything. Five hundred crunches alone won’t get you a six-pack, but some crunches and a salad will, eventually. Everything is interconnected, so we take a multifaceted approach to health and well-being. Throughout the Invigorate experience, we note Ive+ habits, keystone habits that benefit beyond one action’s direct impact. Best-selling author Charles Duhigg discusses the benefits of leveraging keystone habits in his book The Power of Habit.

Systems fail, so turn tough times into tools for the future.

We can want with all our hearts to change, create the perfect plan, and muster up the courage to take a step or two, only to find our faces smashed into the ground without realizing what even happened!

Women who fell face-first into the mud.

This happens more often than not, especially when we’re just starting out. It’s okay. We can use this as an opportunity to grow and learn. Failures are only failures if we don’t learn from our experiences. If we reflect on why we failed, then we can course correct to try again.

Instead of blaming yourself or giving up, take stock of the situation and ask honest questions about why it happened. What did you do right? What could have been done differently? The answers will help you adjust your approach for the next step. By continuously reflecting, refining, and implementing, you’ll develop systems that work for you.

Remember, the more you fail, the more you learn and grow, and that’s how we blossom. 

7. Embrace the season you’re in.

A realistic approach to this journey includes recognizing and accepting the season we’re in.

We’re used to planning things in hours, days, weeks, months, and years, yet our experiences go by in moments, scenes, and seasons. Those moments blend and melt together to form our memories.

Depiction of the four seasons. Spring is cherry blossoms. Summer is green wooded area. Fall is branch with leaves changing to orange. Winter is barren branches covered in snow.

Located in Minnesota, we get a full four seasons; yes, even summer. In the heart of winter, below-zero temperatures and plummeting windshields can make for a long several months.

While we sometimes need to hunker down to get through it, there are many times we brave the elements to enjoy the snow—sledding, skating, skiing, or having an outdoor fire. It can be bitterly cold sometimes, but we embrace the season as it is, knowing it will change again.

As we navigate through our own healing seasons, let’s remember the power of our mindset and the remarkable strength we harbor within ourselves. We can create wonderful memories during our darkest periods, knowing this season shall pass, too, but it didn’t pass us by.

8. Practice selfless self-care for tireless service and compassion.

To serve at the highest level, we first must serve ourselves. That starts by looking within. Self-care should involve a healthy dose of self-reflection and awareness. When we pick the weeds and dig out the soul, we unearth fresh soil to plant new seeds.

“Sugar, by nature, is sweet, and water, by nature, is liquid. When we perform an activity and function which is per nature and as how it has been designed, one experiences harmony. That harmony produces the greatest efficiency, and so the soul, by nature, is designed to serve when we engage in serving and pleasing. That effect of serving and pleasing produces the greatest joy from within.”

How To Achieve SELF MASTERY | Gauranga Das & Jay Shetty Podcast

Selfless self-care—such as practicing mindful meditation, meaningful movement, and sustenance for the soul—will help us become more in tune with our external world. We can then share our own light and energy to impact those around us positively.

Hand letting water drip onto sprouted plant.

So the next time you feel guilty about taking care of yourself, pause and reflect on how caring for yourself will allow you to be a better parent, friend, coworker—human being.

9. Enjoy the music.

Autoimmune remission is a process. It’s not just about reaching remission but living a life that nurtures our health and well-being. 

Life is hard. That’s the point. We’d be bored and complacent if we didn’t face our challenges, struggle, fall, and get back up. That’s a dangerously destructive place to be. Our hardships guide and teach us life lessons—nurturing us to deepen our roots, strengthen our stems, grow leaves, and eventually, blossom. 

We’ll grow without noticing as we embrace our challenges and face our fears. When we do eventually notice, we’ll be further ahead than we ever thought possible. As you embrace the present challenge, remember that this moment now is all that matters. 

So go ahead, sing out loud in the car, and dance in the kitchen with your kids—life is too short not to enjoy the music and dance along the way. 

Dance on, Strivers,
Karin

How to Turn Bad Habits into Healthy Habits by Addressing 6 Sources that Influence Our Behavior

How to Turn Bad Habits into Healthy Habits by Addressing 6 Sources that Influence Our Behavior

Karin W

August 4, 2023

Change behavior expert and best-selling author Al Switzler shares how we can manage those sources and have more control over our actions.

Of course, we want to eat healthy, exercise, and go to bed early to effectively care for ourselves regardless of whether we have an autoimmune disease.

Despite knowing all the health benefits and harmful effects of our unhelpful behaviors, willpower goes out the window when a colleague brings in a box of donuts, or you opt for the couch instead of the treadmill after a long work day.

We think if we can summon enough willpower, we can change our habits overnight. The problem with this approach is that when we try to make too many changes at once, we feel overwhelmed and give up.

Instead of trying to achieve drastic transformations overnight, Switzler advocates for the “vital behaviors” approach, which focuses on identifying and mastering the few key behaviors that can bring about significant change in your life.

“If we can control the sources that control us, we’re more likely to control our own behavior.”

-Al Switzler, coauthor of four NYT bestsellers, including Change Anything.

Identify the Vital Moments Derailing Your Progress

Re-hashing your “bad” decisions isn’t fun, but pinpointing triggers is a necessary step. Recurring incidents can shed light on behavior trends and habits. By recognizing when we’re most vulnerable, we can proactively design strategies and interventions to support the hard decisions when temptation lurks.

A man in a casual white t-shirt and glasses is writing with a pen on a piece of paper.

Triggers aren’t always obvious, though. Triggers can be visuals, smells, body sensations, specific times, places, or memories challenging our motivation. There may be several, and one or two might be flying under the radar.

To help uncover hidden triggers, start with simply jotting down who, what, when, and where you were. Think about how they influenced your behavior in these moments. What were the thoughts and feelings that led up to acting? How does this moment differ from others? What factors make this moment different from all others? Get a notepad and pen, and take a few minutes to write down what you notice about the situation.

How to Manage the 6 Sources that Influence Our Behavior and Habits

Once we’ve identified these defining moments, we can develop a plan to address the six sources that influence our behavior to increase our success rate of making tough choices in our most vulnerable moments.

  1. Personal Motivation – Why am I doing this?
  2. Personal Ability – Can I do this? If not, can I learn a skill to do it?
  3. Social Motivation – Do I have encouragement and support?
  4. Social Ability – Do I have someone to coach me, give me feedback to improve?
  5. Structural Motivation – What rewards/incentives will help keep me going?
  6. Structural Ability – How can I change my environment to make my good behavior easy and my lousy behavior hard?

Personal Motivation – Why am I doing this?

The first and most important source of influence is identifying *your why*. Whether you want to reduce pain, have more energy for your kids, or live healthier, ask yourself why. Significant, meaningful reasons will fuel your motivation and “willpower.”

Dig deep and get specific. Our reason for doing something challenging has to be MUCH bigger than whatever temptation is in the moment. Otherwise, we’ll dive into bagels, pizza, candy, whatever your vice, every single time, regardless of how much we try to talk ourselves out of it.

Write down your reasons to carry with you or record them in a notes app to remind yourself of your reasons in those pivotal moments. Re-reading them or, better yet, saying them out loud can get you past your trigger point.

The key is staying busy. Physical activity can help burn off anxious energy and help calm your nervous system. The more we practice healthy ways to get through cravings and make healthier choices, the easier it gets over time. Eventually, it’ll be habitual and second nature, so you hardly think about it.

Resources to Identify Your Why

Personal Ability – Can I do this? If not, can I learn a skill to do it?

Personal ability includes your skills, abilities, and experiences. We won’t always have the skills to make the good decisions we strive for. You can improve this source of influence by learning new skills and acquiring new knowledge. The more skills you have in your wheelhouse, e.g., those that come quickly to you, the more influence you will have in making good decisions.

A young woman is looking at her laptop with a stack of books next to her on her bed.

For example, if you want to get a raise at work, you could read books or listen to podcasts on negotiating with managers so that when it comes time to ask for a raise, you’ll know the kind of information to have on hand to help your chances best. Or, if you want to start an online business but don’t know how to write code, reading about programming or taking a class can help you build the skills needed for your business.

Learning new skills also increases confidence and inspires motivation when working toward a goal. It can also help you develop patience, communication, and persistence. It builds self-esteem and makes you feel good about yourself — which can motivate you even more!

Invigorate TipPersonal Growth and Professional Development steps offer resources to support your growth and development, including podcasts when you can only manage to listen, webinars when you can stay vertical for short periods, online courses when you’re up for it, and more.

Social Motivation – Do I have encouragement and support?

Building a support network is one of the most powerful ways to achieve your goals. You may achieve your goals faster and more efficiently by getting the people around you on board with your plans. Three and four sources of influence are peer and social pressures around us.

Humans are naturally social creatures, and the people around us heavily influence our decisions and behaviors – good and bad. We can leverage the power of social influences by getting the people around us on board with our goals.

Let them know what you’re up to and how they can help. These like-minded folks can help keep us on track or at least not derail our efforts.

Social motivation comes into play when trying to change bad habits because it gives us an external force that keeps us accountable for our actions. If everyone around you knows about your goal, they will be more likely to help keep you on track or encourage positive behavior than if they didn’t know what was happening with you.

Social Ability – Do I have someone to coach me, give me feedback to improve?

Coaches understand that making positive changes can be challenging, especially when dealing with autoimmune diseases. But they believe in your potential to overcome obstacles and refuse to let those conditions define you.

By providing additional tools and tips, coaches become your partners in your journey toward self-improvement. They don’t claim to have all the answers, but they possess a wealth of experience helping individuals overcome their bad habits and achieve their goals.

Through their guidance, coaches help you identify your unique strengths and weaknesses, unlocking your full potential. This newfound awareness translates into better results empowering you to excel despite the challenges posed by your autoimmune condition.

A smiling young man speaks with a professional woman on a video call.

More than just advisors, coaches serve as crucial sources of support during tough times. When you feel discouraged or overwhelmed, they’ll lift you and restore your belief in yourself. Acting as your accountability partners, coaches help you maintain focus on what truly matters, ensuring that you stay on track toward your goals.

Their guidance goes beyond just motivation and encouragement. Coaches equip you with the practical tools necessary for success. Whether it’s devising personalized strategies or teaching you practical techniques, they provide you with the resources you need to thrive.

Coaches not only possess expertise in their field, but they also understand the unique challenges faced by individuals with autoimmune diseases. Their guidance is grounded in empathy and backed by professional knowledge, making them an invaluable ally in your journey.

Remember, you don’t have to navigate this path alone. Reach out to coaches who can support you, provide valuable insights, and help you make positive changes that will empower you to live your best life, regardless of your autoimmune condition.

Structural Motivation – What Rewards & Incentives will Help me Strive?

As people with autoimmune diseases, we often face daily challenges requiring us to make difficult health decisions. It can be challenging to stay motivated and make choices that align with our long-term goals.

That’s where structural motivation comes in. By utilizing incentives and rewards, we can give ourselves the extra boost we need to make those healthy decisions.

According to sources five and six, structural motivation can provide a sense of reinforcement that can go a long way in our wellness journey. Rewards trigger the release of dopamine, a chemical in the brain that helps regulate motivation and pleasure.

This is why receiving a special reward when we achieve a health goal can make us feel good and motivate us to continue making positive decisions.

A young woman in athletic clothes blows confetti.

There is no “one size fits all” approach to positive reinforcement. What works for one person may not work for another, and you may have to experiment with different approaches before finding the ones that work best for you!

The key here is to find something that works for you and your unique situation. If you have trouble motivating yourself, get creative and try different ideas! A reward doesn’t have to be extravagant or expensive; it just needs to be meaningful enough for you. When it comes to positive reinforcement, it’s all about finding what works for you.

Structural motivation can be a powerful tool for building positive habits and achieving goals. Incorporating incentives and rewards into our wellness routine makes us more likely to sustain healthy behaviors and improve our health outcomes. It’s important to remember that these rewards do not have to be extravagant, but the satisfaction of receiving a little boost can do wonders for our motivation.

Structural motivation can help us stay focused and make smarter, healthier decisions. Whether it’s the thrill of receiving an incentive or the relief of achieving our goals, rewards can motivate us to stay on track and optimize our health.

Remember to be kind to yourself, celebrate small milestones, and take advantage of structural motivation’s benefits.

Structural Ability – How can I change my environment to make my good behavior easy and my bad behavior hard?

Living with an autoimmune disease can be overwhelming. Managing symptoms, sticking to treatment plans, and making lifestyle changes can seem daunting. But what if there was a way to make it easier to maintain good behaviors and even harder to engage in bad ones? That’s where structural ability comes in.

Structural ability is the idea that our environment can shape our behavior for better or worse. By intentionally designing our environments to encourage good habits and discourage bad ones, we can make healthy choices the default option.

Invigorate Tip: Prepare for Decision Fatigue. We make hundreds of decisions each day, and as the day goes on, decision fatigue sets in, which is why ordering pizza Friday night seems much easier than figuring out a meal to cook for dinner. Have a plan, so you don’t have to make the choice.

Eating healthier is a common goal among people with autoimmune diseases, and simple changes can have a lasting impact. For example, switching to smaller plates to help with portion control or signing up for a grocery delivery service to help ensure you have healthy food.

A young woman eats out of a small ice cream container with a spoon.

You can also use structural changes to make bad habits harder. Throw out the container of ice cream to remove the temptation altogether. Or, if you want to spend less time on Facebook, block the site on your computer and put an app blocker on your phone so that it’s impossible for you to access it.

If you don’t give yourself a choice, you don’t have to make the choice. When you want to change your life, consider what small changes can be made to your environment to help you achieve your goal.

Turn bad days into good data – Continuously Monitor and Adapt

No one gets it right the first time. We need time to analyze, adjust and try again until we get the system right.

Behavior change is not a one-time event but an ongoing process requiring constant assessment and adjustment. By regularly evaluating our progress and making necessary tweaks to our strategies, we can ensure that we stay on the path toward our desired outcomes.

Invigorate Tip: 5 Ways to Cope through Cravings:

  1. Go for a walk outside.
  2. Take a shower or bath.
  3. Put on a yoga, cardio, HIIT, or another workout video.
  4. Roll up your sleeves and do some picking up and cleaning. Remember that it doesn’t matter how far you get; each step is progress.
  5. Get groceries, return Amazon packages, or run other errands.

Learn from your missteps to identify where you took a wrong turn and adjust your course for next time. Customize and personalize your plan to align with your goals, strengths, weaknesses, and environment.

Changing bad habits into healthy ones is a process that takes time and effort, but the rewards are worth it.

Let’s figure it out together, my friends.

Dance on,

Karin

Sources

10 Tools to Nurture You Through Autoimmune Disease Flares & Other Tough Times Living With Chronic Illnesses

10 Tools to Nurture You Through Autoimmune Disease Flares & Other Tough Times Living With Chronic Illnesses

Karin W

May 22, 2023

It’s possible to be in remission for long periods, especially when living a healthy lifestyle, mostly eating nutritious food, staying physically active, managing stress, and maintaining meaningful relationships.

While living a healthy lifestyle is your best chance at keeping disease activity at bay, environmental triggers, life events, and overbooked schedules can each be enough to put our health into an unexpected tailspin.

One winter, I had been eating clean, managing stress, and plugging along just fine each day. Without warning, I was horizontal on my couch with what we thought was the flu. It’d been going around the office, so I wasn’t surprised I caught it. It’s difficult to avoid getting sick while taking immunosuppressants.

After three weeks of no improvement, I was admitted to the hospital, where they ran a gamut of tests. The worst part was my new “roommate,” constantly groaning in pain, sounding like a dying animal, making it impossible to get any sleep. Overly exhausted, undernourished, and missing my kids terribly, I felt every ounce of this autoimmune disease crushing my spirit.

In those moments of utter despair, it’s important to have tools to use anywhere at any time to help you cope with sensory overload and work through tough situations.

Go-To Tools to Help You Through Tough Times with Autoimmune Diseases and Chronic Illnesses

When your world feels like it’s crashing down, your focus should be comfort and self-care. That can be difficult when emotions are running high, so our community has compiled a list of tools to keep in your back pocket for the next time you unexpectedly need them.

1. Your Breathe

When we’re anxious, our bodies tense up, our breathing shallows, and an abundance of cortisone/stress releases into our systems. To reduce anxiety quickly, deep breathing is the surest, most effective way to reduce heart rate. Our bodies are very trainable; we must tell them what to do. The simplest way to do that is to breathe out longer than when you inhale.

Guided meditation videos and podcasts are a great way to learn various breathing methods. Training your mind and physiology through breath has been shown to reduce anxiety while increasing focus and concentration, which can also help with brain fog.

2. Change Views

Getting outside isn’t always feasible, especially if you’re stuck in a hospital room, but changing rooms, or even just chairs, can give you a quick boost in mood. Sometimes even the slightest shifts in perspective can spark a new and hopefully more positive chain of thoughts. Looking at positive images can influence your mood if you have limited mobility.

3. Get Thanking

There is always something to be grateful for. The simple act of noting or writing down a few things you’re thankful for helps squelch negative thinking and helps put things into perspective. It also creates an attitude shift that can positively impact everything from our relationships to our health.

Gratitude is an antidote to worry, stress, and anxiety. It also improves happiness by increasing positive emotions like joy, contentment, love, and pride. Gratitude helps people sleep better and increases energy levels and appreciation for others.

Two easy ways to practice gratitude:

1. Expressing gratitude verbally (to yourself or someone else). Thanking someone who has helped, been kind to you, or brightened your day goes a long way.

2. Note what you’re thankful for in a journal or mobile app. Any notebook will do, but journals and mobile apps like Gratitude offer prompts to help you get over any blocks.

4. Get Grounded

Have you heard of grounding or earthing? It’s the idea that connecting with the earth by walking barefoot or lying on the grass can positively affect the body. And it turns out; science is starting to back this theory up.

Research has shown that grounding can help reduce inflammation and pain and improve mood. Amazingly, something as simple as taking off your shoes and connecting with the earth can profoundly impact your health and well-being. So next time you have the chance, why not try it? Who knows, it might just make you feel a little better.

5. Watch Nostalgic Shows

We’re giving you permission to veg out! The familiarity of nostalgic shows can provide security and calmness, especially when life is chaotic. Mindless shows are also easy to turn on in the background to help decompress in the short term. Set a timer or show limit because too much screen time can exacerbate depression symptoms.

6. Listen to Music

Music has a way of affecting our mood like no other.

It’s amazing how a good beat and catchy lyrics can turn a bad day into a good one in minutes. Whether you’re into pop, rock, hip-hop, or classical, it’s all about finding what works for you. Sometimes, all it takes is a few tunes from your favorite artist to get you out of a funk. So pop in those earbuds, crank up the volume, and let the music take you to a better place.

7. Light Hobbies

You know those days when your body doesn’t want to cooperate? When even getting out of bed feels like a Herculean feat? Those are the moments when having a few go-to hobbies in your back pocket is essential. Maybe it’s knitting, puzzling, or coloring. Maybe it’s something else entirely. Having a favorite activity that doesn’t require a ton of physical stamina can be a game-changer. Not only do they help you pass the time, but they can also work wonders for your mental health.

When you’re feeling anxious or stressed, there’s something incredibly soothing about focusing on a creative project for a while. So next time you’re in need of a bit of zen, reach for your crafting supplies and get to work. Your body (and mind) will thank you.

8. Family and Friends

Relationships are the ultimate human experience. When nurturing and long-lasting, they can bring about a sense of belonging and purpose that is hard to come by otherwise.

The feeling of being seen and valued in a relationship is powerful, and it can boost our mood and self-worth in ways we may not realize.

When we have someone who listens, understands, and appreciates us for who we are, we feel more able to express ourselves and show our vulnerability. And, of course, having a supportive partner or friend can make all the difference in our daily life.

But did you know that chemicals in our brains are released when we form close and loving connections with others? Dopamine and endorphins are two of the many feel-good hormones that can make us feel happier and more fulfilled. Lean into your close relationships, especially during challenging times.

9. Faith and Spirituality

Faith can be tricky because it often intersects with religion, which people have strong opinions about. At our community, we believe that spirituality comes in different shapes and sizes, and you can lean into whatever resonates with you.

Whether it’s religion, the universe, or any other belief system, there’s power in positive thoughts and prayer that can help us find peace even in the midst of chaos. It’s amazing how letting go of the things we can’t control can strengthen our faith. So, take a deep breath and trust that your beliefs will guide you.

10. Develop a Flare Care Plan Before You’re in a Flare

Anyone with an autoimmune disease knows flare-ups and tough mental health days can be a real struggle. When you’re in the thick of it, it can feel like trying to climb a mountain with a backpack full of bricks. Everything seems difficult and exhausting. That’s why a plan is so important before you hit rock bottom.

When you’re feeling well, set up a support system and pick out activities you enjoy and find relaxing. That way, when things get tough, you’ll have a blueprint for caring for yourself during hard times. The simple act of having a plan can help us through.

Try the Tools Before You Need Them

You know what they say, practice makes perfect! The same goes for your toolkit. Don’t wait until you’re in a crisis to experiment with different tools. Take your time to try different tactics and see what works best for you.

The great thing about trying out new tools when you’re open-minded is that you may discover something you never thought would work for you. Plus, once you find what works, you’ll already be a pro when using it in a real situation. So don’t be afraid to get out there and try something new. Trust us – your future self will thank you.