10 Tools to Nurture You Through Autoimmune Disease Flares & Other Tough Times Living With Chronic Illnesses

10 Tools to Nurture You Through Autoimmune Disease Flares & Other Tough Times Living With Chronic Illnesses

Karin W

May 22, 2023

It’s possible to be in remission for long periods, especially when living a healthy lifestyle, mostly eating nutritious food, staying physically active, managing stress, and maintaining meaningful relationships.

While living a healthy lifestyle is your best chance at keeping disease activity at bay, environmental triggers, life events, and overbooked schedules can each be enough to put our health into an unexpected tailspin.

One winter, I had been eating clean, managing stress, and plugging along just fine each day. Without warning, I was horizontal on my couch with what we thought was the flu. It’d been going around the office, so I wasn’t surprised I caught it. It’s difficult to avoid getting sick while taking immunosuppressants.

After three weeks of no improvement, I was admitted to the hospital, where they ran a gamut of tests. The worst part was my new “roommate,” constantly groaning in pain, sounding like a dying animal, making it impossible to get any sleep. Overly exhausted, undernourished, and missing my kids terribly, I felt every ounce of this autoimmune disease crushing my spirit.

In those moments of utter despair, it’s important to have tools to use anywhere at any time to help you cope with sensory overload and work through tough situations.

Go-To Tools to Help You Through Tough Times with Autoimmune Diseases and Chronic Illnesses

When your world feels like it’s crashing down, your focus should be comfort and self-care. That can be difficult when emotions are running high, so our community has compiled a list of tools to keep in your back pocket for the next time you unexpectedly need them.

1. Your Breathe

When we’re anxious, our bodies tense up, our breathing shallows, and an abundance of cortisone/stress releases into our systems. To reduce anxiety quickly, deep breathing is the surest, most effective way to reduce heart rate. Our bodies are very trainable; we must tell them what to do. The simplest way to do that is to breathe out longer than when you inhale.

Guided meditation videos and podcasts are a great way to learn various breathing methods. Training your mind and physiology through breath has been shown to reduce anxiety while increasing focus and concentration, which can also help with brain fog.

2. Change Views

Getting outside isn’t always feasible, especially if you’re stuck in a hospital room, but changing rooms, or even just chairs, can give you a quick boost in mood. Sometimes even the slightest shifts in perspective can spark a new and hopefully more positive chain of thoughts. Looking at positive images can influence your mood if you have limited mobility.

3. Get Thanking

There is always something to be grateful for. The simple act of noting or writing down a few things you’re thankful for helps squelch negative thinking and helps put things into perspective. It also creates an attitude shift that can positively impact everything from our relationships to our health.

Gratitude is an antidote to worry, stress, and anxiety. It also improves happiness by increasing positive emotions like joy, contentment, love, and pride. Gratitude helps people sleep better and increases energy levels and appreciation for others.

Two easy ways to practice gratitude:

1. Expressing gratitude verbally (to yourself or someone else). Thanking someone who has helped, been kind to you, or brightened your day goes a long way.

2. Note what you’re thankful for in a journal or mobile app. Any notebook will do, but journals and mobile apps like Gratitude offer prompts to help you get over any blocks.

4. Get Grounded

Have you heard of grounding or earthing? It’s the idea that connecting with the earth by walking barefoot or lying on the grass can positively affect the body. And it turns out; science is starting to back this theory up.

Research has shown that grounding can help reduce inflammation and pain and improve mood. Amazingly, something as simple as taking off your shoes and connecting with the earth can profoundly impact your health and well-being. So next time you have the chance, why not try it? Who knows, it might just make you feel a little better.

5. Watch Nostalgic Shows

We’re giving you permission to veg out! The familiarity of nostalgic shows can provide security and calmness, especially when life is chaotic. Mindless shows are also easy to turn on in the background to help decompress in the short term. Set a timer or show limit because too much screen time can exacerbate depression symptoms.

6. Listen to Music

Music has a way of affecting our mood like no other.

It’s amazing how a good beat and catchy lyrics can turn a bad day into a good one in minutes. Whether you’re into pop, rock, hip-hop, or classical, it’s all about finding what works for you. Sometimes, all it takes is a few tunes from your favorite artist to get you out of a funk. So pop in those earbuds, crank up the volume, and let the music take you to a better place.

7. Light Hobbies

You know those days when your body doesn’t want to cooperate? When even getting out of bed feels like a Herculean feat? Those are the moments when having a few go-to hobbies in your back pocket is essential. Maybe it’s knitting, puzzling, or coloring. Maybe it’s something else entirely. Having a favorite activity that doesn’t require a ton of physical stamina can be a game-changer. Not only do they help you pass the time, but they can also work wonders for your mental health.

When you’re feeling anxious or stressed, there’s something incredibly soothing about focusing on a creative project for a while. So next time you’re in need of a bit of zen, reach for your crafting supplies and get to work. Your body (and mind) will thank you.

8. Family and Friends

Relationships are the ultimate human experience. When nurturing and long-lasting, they can bring about a sense of belonging and purpose that is hard to come by otherwise.

The feeling of being seen and valued in a relationship is powerful, and it can boost our mood and self-worth in ways we may not realize.

When we have someone who listens, understands, and appreciates us for who we are, we feel more able to express ourselves and show our vulnerability. And, of course, having a supportive partner or friend can make all the difference in our daily life.

But did you know that chemicals in our brains are released when we form close and loving connections with others? Dopamine and endorphins are two of the many feel-good hormones that can make us feel happier and more fulfilled. Lean into your close relationships, especially during challenging times.

9. Faith and Spirituality

Faith can be tricky because it often intersects with religion, which people have strong opinions about. At our community, we believe that spirituality comes in different shapes and sizes, and you can lean into whatever resonates with you.

Whether it’s religion, the universe, or any other belief system, there’s power in positive thoughts and prayer that can help us find peace even in the midst of chaos. It’s amazing how letting go of the things we can’t control can strengthen our faith. So, take a deep breath and trust that your beliefs will guide you.

10. Develop a Flare Care Plan Before You’re in a Flare

Anyone with an autoimmune disease knows flare-ups and tough mental health days can be a real struggle. When you’re in the thick of it, it can feel like trying to climb a mountain with a backpack full of bricks. Everything seems difficult and exhausting. That’s why a plan is so important before you hit rock bottom.

When you’re feeling well, set up a support system and pick out activities you enjoy and find relaxing. That way, when things get tough, you’ll have a blueprint for caring for yourself during hard times. The simple act of having a plan can help us through.

Try the Tools Before You Need Them

You know what they say, practice makes perfect! The same goes for your toolkit. Don’t wait until you’re in a crisis to experiment with different tools. Take your time to try different tactics and see what works best for you.

The great thing about trying out new tools when you’re open-minded is that you may discover something you never thought would work for you. Plus, once you find what works, you’ll already be a pro when using it in a real situation. So don’t be afraid to get out there and try something new. Trust us – your future self will thank you.

Just Diagnosed with an Autoimmune Disease? Start Here: 3 Key Areas to Focus on for Your Health and Healing Journey

Just Diagnosed with an Autoimmune Disease? Start Here: 3 Key Areas to Focus on for Your Health and Healing Journey

Karin W

May 9, 2023

Practical Steps to Help You Navigate Life After Your Diagnosis

The diagnosis can suck the air from your lungs, or it can be a welcome relief. People take an average of 4.6 years and see five doctors to get an autoimmune disease diagnosis.

During this time, they can go years with unmanaged symptoms. This situation results in further complications. Getting that diagnosis now means you can work toward remission through treatment.

Yet, managing autoimmune diseases with medicine is only one piece of the puzzle.

Research shows we have more control over our health through lifestyle and self-care than we earlier understood. This is true regardless of the diagnosis or specific disease. This responsibility increases for us as patients.

Yet, it also empowers us to take control of our health journey.

Lifestyle factors can trigger autoimmune diseases. Poor diet, stress, lack of sleep, and sedentary behavior worsen symptoms.

The good news is that there are things you can do to improve your health while managing an autoimmune disease.

1. Ruthlessly Focus on Self-Care by Enabling Your Support Network

Medications can take several months to be fully therapeutic. During this time, managing symptoms and pain is your primary focus. Until you can get the disease in remission, you need more rest–even hours more at times. Taking care of yourself is crucial when managing an autoimmune disease.

That’s where your support network comes in. The extra help can be a game-changer when freeing up the time to care for ourselves. To do that, we have resources to allow your support network, like Give In Kind.

Self-care often gets de-prioritized, though, even when we have help. We are doing many other “more productive” things, but self-care is critical to your overall well-being.

Use the idea of #oneaction to commit to a self-care activity and amount of time, and set a timer. Maybe it’s a 10-minute meditation session each morning or an hour-long yoga session several times a week.

Don’t get caught up on the duration; taking that one action is important.

2. Take Care of Your Head to Care of Your Heart

Chronic illness can take an emotional and physical toll, so it’s important to focus on your mental health. The decision to take care of your mental health can come with many preconceived notions and stigmas.

Still, there are small things you can do to support your mental health. It doesn’t have to be a dramatic commitment.

Believe it or not, these small moments of self-care can have a significant impact on overall well-being.

Journaling a few minutes every day can help. Noting what you’re thankful for in the Gratitude app is beneficial, too.

Taking time out for mindful practices like meditation and deep breathing also contributes positively to mental health.

Social connection is a considerable part of our mental well-being. Your family and friends will support you in their ways.

Still, having people who truly understand and empathize with your autoimmune challenges can help tremendously.

Our Invigorate Facebook group is an active community of autoimmune thrivers and advocates who can empathize and support you anytime.

When looking for more support, seeing a therapist can give perspective. They offer tools to help you navigate challenges accompanying chronic illness.

When looking for a therapist, ask around for someone who specializes in chronic illnesses. You can often read about therapists’ specialties on a practice’s website.

You can also call to speak with an intake coordinator directly. Take advantage of telephone or video conferencing to make scheduling and attending appointments easier.

3. Clean Eating: Diet is Critical to Reducing Autoimmune Disease Symptoms

Our Invigorate community ranks diet and nutrition as the most influential factor in their health journey.

The food we put into our bodies has a significant effect on our physical health and mental well-being. To promote optimal health, eating a clean, whole-food diet consisting of fruits, vegetables, and seeds is essential. Meat can be fine, but we focus on produce and seeds for simplicity.

Their antioxidants and nutrients help your body fight inflammation. They also support your immune system. A good action is to add a green smoothie or salad to your daily intake.

An important part of nutrition is hydration. Over half of our bodies are water, up to 60% on average.

Our water intake is a critical factor in supporting many bodily functions, like lubricating the joints, delivering oxygen throughout the body, preventing kidney damage,

restoring fluids lost through metabolism, breathing, sweating, and removing waste. Despite hydration’s role in our health, it’s been reported that as much as 75% of the population is chronically dehydrated.

How much water should we be drinking?

We should aim for at least one-half of our body weight in ounces daily. To make it manageable, take one action. Fill up your water bottle.

Drink one more bottle today than you otherwise would. Good hydration coupled with nutrient-dense whole foods should help improve symptoms.

*Bonus: our bodies are made to move, but you don’t have to do intense workouts to reap the benefits

When first diagnosed and symptoms are erratic, exercise can seem insurmountable. Yet you don’t need to be doing HIIT workouts six days a week to experience benefits from physical activity.

Light stretching and walking can increase heart rate. These activities lubricate joints and support the range of motion. This is vital for overall health. When you feel ready, you can try many low-impact options.

Exercises like yoga, Pilates, and strength training can improve muscle mass and support overall health.

By adjusting your routine to your fitness level and disease activity, it’s easier to be consistent in moving daily.

Take it #OneAction at a time, especially early on.

We can actively improve our health and well-being by managing our lifestyle. It can be easy to feel overwhelmed when living with an autoimmune disease.

Still, small changes like getting more sleep or eating healthier foods can significantly affect overall symptom management.

Additionally, it creates a support network of family, friends, and professionals. This will guarantee you have people to rely on if your illness feels too much. This allows us to devote time and energy to care for ourselves–emotionally and physically.

A balanced diet, adequate rest, regular exercise, and mental health care contribute significantly. These efforts help nearly anyone with an autoimmune disease. It improves their quality of life and gives them a chance at remission.

The most important thing to remember is that it doesn’t all happen at once. Focus on #oneaction at a time to keep it manageable.

Recovery takes time and effort. Adjust your activity level to match your current state rather than just pushing through. This way, your recovery will go much smoother.

Celebrating Self-Acceptance and Perseverance through Parenting with a Chronic Illness

Celebrating Self-Acceptance and Perseverance through Parenting with a Chronic Illness

Karin W

May 5, 2023

Surviving: chronic fatigue, hair loss, chronic pain, anxiety, depression, nausea, dizziness, bouts of confusion and inability to focus, insomnia, memory issues, headaches, joint pain, etc.

Striving: a diagnosis! and treatment

How long have you been on your journey with autoimmune issues? While I haven’t been diagnosed, I’ve dealt with autoimmune issues for about a decade. At the very least, I’ve been dealing with something chronic for at least that long.

What was your turning point in looking to improve your health? Basically, now. This is a new journey for me. I’ve put on significant weight and have noticed that even light physical activity that I used to do easily exhausts me within minutes. As the mother of an active 6-year-old, I need to be able to walk alongside her while she scooters around town, sit on her bedroom floor for an hour and play ponies, carry her to bed when she falls asleep on me on the couch.

But I also do it for me. I miss looking in the mirror and not hating myself. What I see isn’t even an echo of what others see because whatever it is I’m dealing with has warped my own perceptions of myself beyond recognition.

And I miss having the energy to actively participate in my life.

What’s something you’ve learned along the way?

Something that’s been a rude awakening, but also freeing, is that what I’m dealing with is (mostly) invisible. It’s hard to offer others the benefit of the doubt when they keep nudging me to do this or that when I’m out of spoons or offer inane advice like smoothies and jogging, but the flipside of that is that what I am frustrated with myself for right now they don’t see.

I shaved my head because my hair loss became depressing. Others see a badass, someone who doesn’t care what others think, an artistic temperament, a free spirit. (And to some extent, they’re not wrong, even if I’ve lost track of her.)

I see dark circles under my eyes, thirty extra pounds, stretch marks, and patches of scalp. I see my calendar and all the events I missed out on. I see my daughter’s eyes when I let her know we have to head back inside because I’m just too tired to continue again.

I know what got me here, and I can hate it all I want, but here’s the thing: most people just see another human living their life. They meet you for the first time wherever you are in your journey, and that’s who you are to them. You see every moment of your own life, the behind-the-scenes exclusive; they see snapshots.

If they judge based on that, eff them. And honestly? I don’t think most bother.

What advice would you give someone starting in their autoimmunity journey?

Meet yourself where you are. It’s okay to want more and to work towards it, and the desire to improve your situation is crucial to seek out the support you need–but on those days where you just can’t? Don’t, and don’t feel bad for it.

What are you currently striving for?

Above all, a diagnosis and treatment–whatever that looks like. I have difficulty making it to appointments, and severe medical anxiety, so I know it will be a long road. But at the end of the day, having a diagnosis will give me a basis for making more informed decisions about my health.

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