A Path to Support Yourself while Caring for Others Navigating Autoimmune Disease
Discover Resources for Caregivers Supporting Family & Friends Navigating Autoimmune Disease
When a patient is diagnosed with an autoimmune disease, so are the people around them. Being a caregiver, friend, or colleague of someone with an autoimmune disease can be demanding, especially during flares.
Due to the volatility and intensity of these diseases, it’s important to seek out resources to support yourself while caring for loved ones. We provide tools and resources to help lighten your load and take care of yourself.
Harness the Power of Your Network with Care Coordination Tools
Our care coordination resources make it easier for friends and family to volunteer for specific tasks like bringing meals or helping with kids.
Give In Kind
Give InKind is an easy way to organize support.
- Care Calendar to schedule care
- Wishlist to share items needed
- Personalized page to keep your family & friends up-to-date
- Fundraising features to ease financial burdens
24me – A Personal Assistant App
A personal assistant app that puts everything related to your schedule in one place, so you don’t have to flip through multiple apps.
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Powerful Tools For Caregivers
Powerful Tools for Caregivers is a free online or in-person course to help caregivers better care for themselves while caring for others.
Browse Caregiver Tools
Be There Certificate
Learn to support someone struggling with their mental health through this online course created by Jack.org in partnership with Born This Way Foundation.
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Caregiver Action Network (CAN)
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
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Virtual Caregivers Support Group
Virtual Caregivers Support Groups are guided by a licensed mental health professional and are a great opportunity for caregivers to meet and explore shared experiences as a caregiver. These groups provide a safe, judgment-free, and confidential virtual space to address emotional distress associated with caregiving while exploring Primary Immunodeficiencies (PI)-specific challenges. Participants must be 18 years or older and connected to a person with a PI (this includes grandparents, siblings, aunts, uncles, etc.)
Learn more.Explore Related Steps to Remission
Manage Flares
When you find yourself amid a flare, the best thing you can do is focus on self-care to make your way back to remission. Check out our flare management resources, thoughtfully collected to mitigate pain and other symptoms.
Explore Steps to Manage Flares
Ease Your Mind
It can be discouraging and frustrating when you’re in a flare and dependent on others for day-to-day support. Our mental health resources can help you manage difficult periods and ongoing challenges living with an autoimmune disease or chronic illness.
See Steps to Ease Your Mind
Nourish Your Body & Mind
Cooking and putting the work in to make a nutritious meal is often the last thing on your mind when disease symptoms arise. Meal delivery services are an easy way to get healthful meals that accommodate a variety of dietary and cooking preferences.
Discover Steps to Nourish Your Well-Being